A matter of life and death: practical and ethical constraints in the development of a mobile verbal autopsy tool

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A matter of life and death : practical and ethical constraints in the development of a mobile verbal autopsy tool

Verbal autopsy (VA) involves interviewing relatives of the deceased to identify the probable cause of death and is typically used in settings where there is no official system for recording deaths or their causes. Following the interview, physician assessment to determine probable cause can take several years to complete. The World Health Organization (WHO) recognizes that there is a pressing need for a mobile device that combines direct data capture and analysis if this technique is to become part of routine health surveillance. We conducted a field test in rural South Africa to evaluate a mobile system that we designed to meet WHO requirements (namely, simplicity, feasibility, adaptability to local contexts, cost-effectiveness and program relevance). If desired, this system can provide immediate feedback to respondents about the probable cause of death at the end of a VA interview. We assessed the ethical implications of this technological development by interviewing all the stakeholders in the VA process (respondents, fieldworkers, physicians, population scientists, data managers and community engagement managers) and highlight the issues that this community needs to debate and resolve.

Byass, PeterUmeå universitet,Epidemiologi och global hälsa,Umeå Centre for Global Health Research, Umeå University, University of the Witwatersrand, South Africa and University College London, United Kingdom(Swepub:umu)peby0002 (författare)
Kahn, KathleenUmeå universitet,Epidemiologi och global hälsa,Umeå Centre for Global Health Research, Umeå University, University of the Witwatersrand, South Africa and University College London, United Kingdom(Swepub:umu)kaka0045 (författare)
Mee, PaulUmeå universitet,Epidemiologi och global hälsa,Umeå Centre for Global Health Research, Umeå University, University of the Witwatersrand, South Africa and University College London, United Kingdom(Swepub:umu)pame0007 (författare)
Fottrell, EdwardUmeå universitet,Epidemiologi och global hälsa,UCL Institute for Global Health, University College London, United Kingdom(Swepub:umu)edfo0004 (författare)
Umeå universitetEpidemiologi och global hälsa (creator_code:org_t)

Ingår i:CHI '13 Proceedings of the SIGCHI Conference on Human Factors in Computing SystemsPages 1489-1498New York, NY, USA : ACM, s. 1489-14989781450318990

Av författaren/redakt...: Bird, J.; Byass, Peter; Kahn, Kathleen; Mee, Paul; Fottrell, Edward

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