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  • Stack, Rebecca J.Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Nottingham Trent Univ, Div Psychol, Nottingham, England. (författare)

Perceptions of risk and predictive testing held by the first-degree relatives of patients with rheumatoid arthritis in England, Austria and Germany : a qualitative study

  • Artikel/kapitelEngelska2016

Förlag, utgivningsår, omfång ...

  • 2016-06-29
  • BMJ,2016
  • electronicrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:uu-303406
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-303406URI
  • https://doi.org/10.1136/bmjopen-2015-010555DOI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

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Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Objectives The family members of patients with rheumatoid arthritis (RA) are at increased risk of developing RA and are potential candidates for predictive testing. This study explored the perceptions of first-degree relatives of people with RA about being at risk of RA and engaging in predictive testing. Methods 34 first-degree relatives (siblings and offspring) of patients with RA from the UK, Germany and Austria participated in semistructured interviews about their perceptions of RA risk and the prospect of predictive testing. Interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Results First-degree relatives were aware of their susceptibility to RA, but were unsure of the extent of their risk. When considering their future risk, some relatives were concerned about the potential impact that RA would have on their lives. Relatives were concerned that knowing their actual risk would increase their anxiety and would affect decisions about their future. Also, relatives were concerned about the levels of uncertainty associated with predictive testing. Those in favour of knowing their future risk felt that they would need additional support to understand the risk information and cope with the emotional impact of this information. Conclusions Identifying individuals at risk of RA may allow targeted interventions to reduce the risk and consequence of future disease; however, relatives have concerns about predictive testing and risk information. The development of strategies to quantify and communicate risk needs to take these views into account and incorporate approaches to mitigate concerns and minimise the psychological impact of risk information.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Stoffer, MichaelaMed Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.;Univ Appl Sci Hlth Profess, Upper Austria, Austria. (författare)
  • Englbrecht, MathiasUniv Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany. (författare)
  • Mosor, ErikaMed Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria. (författare)
  • Falahee, MarieUniv Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England. (författare)
  • Simons, GwendaUniv Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England. (författare)
  • Smolen, JosefMed Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria. (författare)
  • Schett, GeorgUniv Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany. (författare)
  • Buckley, Chris D.Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Nottingham Trent Univ, Div Psychol, Nottingham, England. (författare)
  • Kumar, KantaUniv Manchester, Sch Nursing, Fac Med & Human Sci, Manchester, Lancs, England. (författare)
  • Hansson, MatsUppsala universitet,Centrum för forsknings- och bioetik(Swepub:uu)matshans (författare)
  • Hueber, AxelUniv Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany. (författare)
  • Stamm, TanjaMed Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria. (författare)
  • Raza, KarimUniv Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Sandwell & West Birmingham Hosp NHS Trust, Dept Rheumatol, Birmingham, W Midlands, England. (författare)
  • Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Nottingham Trent Univ, Div Psychol, Nottingham, England.Med Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.;Univ Appl Sci Hlth Profess, Upper Austria, Austria. (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:BMJ Open: BMJ6:62044-6055

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  • BMJ Open (Sök värdpublikationen i LIBRIS)

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