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Direct-to-consumer genetic testing : where and how does genetic counseling fit?
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- Middleton, Anna (author)
- Wellcome, Connecting Sci, Soc & Eth Res Grp, Genome Campus, Cambridge, England.
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- Mendes, Alvaro (author)
- Univ Porto, I3S, IBMC Inst Mol & Cell Biol, UnIGENe, Oporto, Portugal.;Univ Porto, I3S, IBMC Inst Mol & Cell Biol, Ctr Predict & Prevent Genet CGPP, Oporto, Portugal.
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- Benjamin, Caroline M. (author)
- Univ Cent Lancashire, Sch Community Hlth & Midwifery, Preston, Lancs, England.;Liverpool Womens NHS Hosp Trust, Liverpool, Merseyside, England.
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- Howard, Heidi Carmen (author)
- Uppsala universitet,Centrum för forsknings- och bioetik
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Wellcome, Connecting Sci, Soc & Eth Res Grp, Genome Campus, Cambridge, England Univ Porto, I3S, IBMC Inst Mol & Cell Biol, UnIGENe, Oporto, Portugal.;Univ Porto, I3S, IBMC Inst Mol & Cell Biol, Ctr Predict & Prevent Genet CGPP, Oporto, Portugal. (creator_code:org_t)
- FUTURE MEDICINE LTD, 2017
- 2017
- English.
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In: Personalized Medicine. - : FUTURE MEDICINE LTD. - 1741-0541 .- 1744-828X. ; 14:3, s. 249-257
- Related links:
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https://doi.org/10.2...
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https://uu.diva-port... (primary) (Raw object)
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https://www.futureme...
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https://urn.kb.se/re...
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https://doi.org/10.2...
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Abstract
Subject headings
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- Direct-to-consumer genetic testing for disease ranges from well-validated diagnostic and predictive tests to 'research' results conferring increased risks. While being targeted at public curious about their health, they are also marketed for use in reproductive decision-making or management of disease. By virtue of being 'direct-to-consumer' much of this testing bypasses traditional healthcare systems. We argue that direct-to-consumer genetic testing companies should make genetic counseling available, pre- as well as post-test. While we do not advocate that mandatory genetic counseling should gate-keep access to direct-to-consumer genetic testing, if the testing process has the potential to cause psychological distress, then companies have a responsibility to provide support and should not rely on traditional healthcare systems to pick up the pieces.
Keyword
- CHIP ME
- connecting science
- direct-to-consumer
- DTCGT
- genetic counseling
- genetic test
- genomics
- website
Publication and Content Type
- ref (subject category)
- art (subject category)
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