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The everyday life s...
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Eriksson, GunillaKarolinska Institutet,Uppsala universitet,Rehabiliteringsmedicin,Karolinska Inst, Div Occupat Therapy, Stockholm, Sweden.
(författare)
The everyday life situation of caregivers to family members who have had a stroke and received the rehabilitation intervention F@ce in Uganda
- Artikel/kapitelEngelska2021
Förlag, utgivningsår, omfång ...
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2021-06-15
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BioMed Central (BMC),2021
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electronicrdacarrier
Nummerbeteckningar
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LIBRIS-ID:oai:DiVA.org:uu-452436
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https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-452436URI
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https://doi.org/10.1186/s13690-021-00618-zDOI
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http://kipublications.ki.se/Default.aspx?queryparsed=id:147057894URI
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Språk:engelska
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Sammanfattning på:engelska
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Ämneskategori:ref swepub-contenttype
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Ämneskategori:art swepub-publicationtype
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Background: Stroke is increasing in Africa and consequences such as limitations in the performance of activities in everyday life persist a long time. A family member might need to care for and assist the person who has had a stroke. The life situation of these caregivers thereby changes, which could lead to increased workload and new responsibilities in caring for which they lack but request knowledge. During the F@ce rehabilitation program, the caregivers received counseling, which is uncommon in the African context. The aim of the study was twofold; (1) to investigate the perceived caregiver burden and life satisfaction and, (2) to explore and describe the life situation for caregivers to persons that have had a stroke and received the mobile phone supported rehabilitation F@ce in urban areas in Uganda.Method: A mixed method design was used. Twelve caregivers took part in a semi-structured interview regarding their everyday life situation and responded to questionnaires on caregiver burden and life satisfaction. Latent qualitative content analysis was used to analyse the interviews.Results: Five categories were identified in the caregivers' experiences of their life situation: Feels obligated but is just a natural commitment; a tightly scheduled everyday life; being the supporting relative; the caregivers approach as rehabilitators; and being supported by the rehabilitation intervention. The caregivers rated relatively high on the Caregiver Burden Scale and two thirds of the sample rated their satisfaction with life as a whole as dissatisfying. Further ratings on the Life Satisfaction checklist revealed that the financial, vocational, leisure and family situations were dissatisfying.Conclusions: Even if it was viewed as a natural commitment to be a caregiver when a family member had had a stroke, the life situation changed substantially for those who took on the caregiving role. Caregiving responsibilities were challenging as well as a heavy workload and a strained financial situation as many were giving up on jobs. The participants felt burdened and rated a low life satisfaction. The F@ce intervention was, however, expressed as valued and involved support and advice in their caregiving situation as well as information on stroke which relieved stress among them.
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Biuppslag (personer, institutioner, konferenser, titlar ...)
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Kamwesiga, Julius TungaKarolinska Inst, Div Occupat Therapy, Stockholm, Sweden.;Uganda Allied Hlth Examinat Board, Kampala, Uganda.
(författare)
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Guidetti, SusanneKarolinska Institutet
(författare)
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Uppsala universitetRehabiliteringsmedicin
(creator_code:org_t)
Sammanhörande titlar
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Ingår i:Archives of Public Health: BioMed Central (BMC)790778-73672049-3258
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