Co-creation of a Serious Game About Radiotherapy: Participatory Action Research Study With Children Treated for Cancer

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Cederved, CatarinaUppsala universitet,Barnonkologisk forskning - särskilt fokus på komplikationer,Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden (författare)

Co-creation of a Serious Game About Radiotherapy : Participatory Action Research Study With Children Treated for Cancer

Artikel/kapitelEngelska2022

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2022-05-31
JMIR Publications Inc.2022
electronicrdacarrier

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LIBRIS-ID:oai:DiVA.org:uu-476506
https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-476506URI
https://doi.org/10.2196/34476DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-203108URI

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Språk:engelska
Sammanfattning på:engelska

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Background: Children with cancer who have to undergo radiotherapy can experience fear, because they have no prior knowledge of the treatment. One way of teaching children about the treatment and reducing their fear is to prepare them for it through serious games. Involvement of the end user in the design process within medicine is a way of ensuring that the product being developed will fit the intended user.Objective: The aim was to outline the contributions made by children and their parents through participatory action research when designing a serious game about radiotherapy.Methods: By means of participatory action research, children and their parents participated in the development of a serious game about radiotherapy. Nine children (7-10 years old) were included, each with an accompanying parent. A qualitative approach was used that included interviews and participant observation. Six rounds of iterative development process were used with the children and their parents. Meetings with the children were held either face-to-face or online. Each round resulted in a list of suggestions for changes to the game. A thematic analysis was performed based on the list of proposed changes, underpinned by all gathered data, to highlight how the children’s participation changed the game.Results: Two main themes were identified. The first theme was “The children’s participation was affected by their health and treatment” and included the following subthemes: “an opportunity to share emotions and perceptions of radiotherapy” and “the possibility to participate was affected by the severity of the disease.” The second theme was “participation allowed becoming an active part of game development” and included the following subthemes: “the opportunity to express sentiments about the game,” “the emergence of a playable game through the children’s contributions,” and “the necessity of understanding the text.”Conclusions: The method used in this study made the children active participants, and our results suggest that this method can be used by health care researchers to cocreate serious games with children. It is necessary to inform the children involved that the process takes time, and that the process can be altered to allow as much participation as possible without placing a burden on them. The children’s illness affected their possibility to take part; thus, it is crucial to accommodate the children’s needs when conducting similar studies. The parents’ participation facilitated the meetings for their children, even though their involvement in the game design was negligible.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
children
participatory action research
game design
radiotherapy
education
supportive care
oncology

Biuppslag (personer, institutioner, konferenser, titlar ...)

Back, Jon,1977-Uppsala universitet,Institutionen för informatik och media,Department of Informatics and Media, Uppsala University, Uppsala, Sweden(Swepub:uu)jonba848 (författare)
Ångström Brännström, CharlotteUmeå universitet,Uppsala universitet,Barnonkologisk forskning - särskilt fokus på komplikationer,Department of Nursing, Umeå University , Umeå , Sweden,Institutionen för omvårdnad,Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden(Swepub:umu)chan0001 (författare)
Ljungman, Gustaf,1958-Uppsala universitet,Barnonkologisk forskning - särskilt fokus på komplikationer,Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden(Swepub:uu)gustaflm (författare)
Engvall, Gunn,1955-Uppsala universitet,Barnonkologisk forskning - särskilt fokus på komplikationer,Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden(Swepub:uu)gueng932 (författare)
Uppsala universitetBarnonkologisk forskning - särskilt fokus på komplikationer (creator_code:org_t)

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Ingår i:JMIR Human Factors: JMIR Publications Inc.9:22292-9495

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Av författaren/redakt...: Cederved, Catari ...; Back, Jon, 1977-; Ångström Brännst ...; Ljungman, Gustaf ...; Engvall, Gunn, 1 ...

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