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  • Aktaa, SulemanUniv Leeds, Leeds Inst Cardiovasc & Metab Med, Leeds, W Yorkshire, England.;Univ Leeds, Leeds Inst Data Analyt, Leeds, W Yorkshire, England.;Leeds Teaching Hosp NHS Trust, Dept Cardiol, Leeds, W Yorkshire, England (author)

Data standards for heart failure : the European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart)

  • Article/chapterEnglish2022

Publisher, publication year, extent ...

  • 2022-04-20
  • Oxford University Press,2022
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:uu-485199
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-485199URI
  • https://doi.org/10.1093/eurheartj/ehac151DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-184835URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:149369017URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Funding Agencies|European Society of Cardiology
  • Standardized data definitions are essential for assessing the quality of care and patient outcomes in observational studies and randomized controlled trials. The European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart) project of the European Society of Cardiology (ESC) aims to create contemporary pan-European data standards for cardiovascular diseases, including heart failure (HF). We followed the EuroHeart methodology for cardiovascular data standard development. A Working Group including experts in HF registries, representatives from the Heart Failure Association of the ESC, and the EuroHeart was formed. Using Embase and Medline (2016-21), we conducted a systematic review of the literature on data standards, registries, and trials to identify variables pertinent to HF. A modified Delphi method was used to reach a consensus on the final set of variables. For each variable, the Working Group developed data definitions and agreed on whether it was mandatory (Level 1) or additional (Level 2). In total, 84 Level 1 and 79 Level 2 variables were selected for nine domains of HF care. These variables were reviewed by an international Reference Group with the Level 1 variables providing the dataset for registration of patients with HF on the EuroHeart IT platform. By means of a structured process and interaction with international stakeholders, harmonized data standards for HF have been developed. In the context of the EuroHeart, this will facilitate quality improvement, international observational research, registry-based randomized trials, and post-marketing surveillance of devices and pharmacotherapies across Europe.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Batra, GoravUppsala universitet,Uppsala kliniska forskningscentrum (UCR),Kardiologi,Uppsala Univ, Sweden; Uppsala Univ, Sweden(Swepub:uu)gorba357 (author)
  • Cleland, John G. F.Univ Glasgow, Glasgow Royal Infirm, Robertson Ctr Biostat, Glasgow, Lanark, Scotland.;Univ Glasgow, Glasgow Royal Infirm, Glasgow Clin Trials Unit, Inst Hlth & Wellbeing, Glasgow, Lanark, Scotland.;Imperial Coll London, Natl Heart & Lung Inst, London, England (author)
  • Coats, AndrewUniv Warwick, Coventry, W Midlands, England.;European Soc Cardiol, Heart Failure Assoc, Brussels, Belgium (author)
  • Lund, Lars H.Karolinska Institutet (author)
  • McDonagh, TheresaKings Coll Hosp London, Dept Cardiol, Denmark Hill, London, England.;Kings Coll London, British Heart Fdn, Ctr Excellence, Sch Cardiovasc Med & Sci, London, England (author)
  • Rosano, GiuseppeSt Georges Hosp NHS Trust Univ London, Cardiovasc Clin Acad Grp, London, England.;IRCCS San Raffaele Pisana, Rome, Italy (author)
  • Seferovic, PetarUniv Belgrade, Serbian Acad Sci & Arts, Fac Med, Heart Failure Ctr,Med Ctr, Belgrade, Serbia (author)
  • Vasko, PeterUniv Hosp, Dept Cardiol, Linköping, Sweden.;SWEDEHEART Swedish Web Syst Enhancement & Dev Evi, Växjö, Sweden.;SwedeHF Swedish Heart Failure Registry, Växjö, Sweden,Region Östergötland, Kardiologiska kliniken US(Swepub:liu)n/a (author)
  • Wallentin, Lars,1943-Uppsala universitet,Uppsala kliniska forskningscentrum (UCR),Institutionen för medicinska vetenskaper,Science for Life Laboratory, SciLifeLab,Uppsala Univ, Sweden; Uppsala Univ, Sweden(Swepub:uu)larswall (author)
  • Maggioni, Aldo P.Natl Assoc Hosp Cardiologists Res Ctr ANMCO, Florence, Italy (author)
  • Casadei, BarbaraUniv Oxford, NIHR Oxford Biomed Res Ctr, Div Cardiovasc Med, Oxford, England (author)
  • Gale, Chris P.Univ Leeds, Leeds Inst Cardiovasc & Metab Med, Leeds, W Yorkshire, England.;Univ Leeds, Leeds Inst Data Analyt, Leeds, W Yorkshire, England.;Leeds Teaching Hosp NHS Trust, Dept Cardiol, Leeds, W Yorkshire, England (author)
  • Univ Leeds, Leeds Inst Cardiovasc & Metab Med, Leeds, W Yorkshire, England.;Univ Leeds, Leeds Inst Data Analyt, Leeds, W Yorkshire, England.;Leeds Teaching Hosp NHS Trust, Dept Cardiol, Leeds, W Yorkshire, EnglandUppsala kliniska forskningscentrum (UCR) (creator_code:org_t)

Related titles

  • In:European Heart Journal: Oxford University Press43:23, s. 2185-+0195-668X1522-9645

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