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Understanding the c...
Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer : A basis for developing internet-based support
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- Langegård, Ulrica (författare)
- Uppsala universitet,Cancerprecisionsmedicin
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- Cajander, Åsa, Professor, 1971- (författare)
- Uppsala universitet,Bildanalys och människa-datorinteraktion,Datavetenskapens didaktik,Avdelningen Vi3
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- Ahmad, Awais (författare)
- Uppsala universitet,Bildanalys och människa-datorinteraktion,Avdelningen Vi3
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- Carlsson, Maria E., 1958- (författare)
- Uppsala universitet,Livsstil och rehabilitering vid långvarig sjukdom
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- Ohlsson-Nevo, Emma, 1960- (författare)
- Örebro universitet,Institutionen för hälsovetenskaper,Region Örebro län,Department of Surgery
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- Johansson, Birgitta, 1959- (författare)
- Uppsala universitet,Cancerprecisionsmedicin,Hälsovetenskap och e-hälsa
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- Ehrsson, Ylva Tiblom (författare)
- Uppsala universitet,Öron-, näs- och halssjukdomar
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(creator_code:org_t)
- Elsevier, 2023
- 2023
- Engelska.
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Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 64
- Relaterad länk:
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https://doi.org/10.1...
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https://uu.diva-port... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- PURPOSE: Being an informal caregiver of an individual with head and neck cancer can be demanding. Still, informal caregivers can provide valuable support to patients throughout the disease trajectory. The aim of this study was to explore informal caregivers' views on their challenges and needs in attaining high preparedness for caregiving.METHODS: Fifteen informal caregivers of individuals with head- and neck cancer participated in a focus group discussion or an individual interview. Thematic analysis utilizing an inductive approach was performed.RESULTS: The results describe the challenges that informal caregivers to individuals with head and neck cancer perceive and their needs for support in preparedness for caregiving. Three main themes were found: Challenges of being an informal caregiver, Transformation in life and Informal caregiver' needs of support and sharing care.CONCLUSION: This study contributes to the understanding of the challenges for informal caregivers to individuals with head and neck cancer in increasing preparedness for caregiving. To improve preparedness for caregiving, informal caregivers need education, information and support regarding physical, psychological and social issues for individuals with head and neck cancer.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- NATURVETENSKAP -- Data- och informationsvetenskap -- Människa-datorinteraktion (hsv//swe)
- NATURAL SCIENCES -- Computer and Information Sciences -- Human Computer Interaction (hsv//eng)
Nyckelord
- Caregiver burden
- Head and neck cancer
- Informal caregiver
- Internet-based intervention
- Preparedness
- Qualitative research
- Thematic analysis
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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