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Search: WFRF:(Åberg Anna) > (2020-2024) > Adaptation of a gui...

  • Blomberg, OscarUppsala universitet,Hälsovetenskap och e-hälsa (author)

Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden : a qualitative study exploring the needs and preferences of key stakeholders

  • Article/chapterEnglish2024

Publisher, publication year, extent ...

  • Springer,2024
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:uu-521975
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-521975URI
  • https://doi.org/10.1186/s12877-023-04606-6DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:du-47961URI

Supplementary language notes

  • Language:English
  • Summary in:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • BackgroundDespite depression being prevalent in people with dementia, contributing to negative health outcomes and placing increased burden on individuals and family members, access to psychological interventions is limited. A potential solution is guided low-intensity behavioral activation, supported by informal caregivers and guided by healthcare professionals. However, it is necessary to adapt interventions to meet the needs and preferences of key stakeholders to enhance acceptability and relevance. Study objectives were to: (1) explore needs and preferences concerning the content and delivery model of the guided low-intensity behavioral activation intervention; and (2) adapt the intervention to ensure cultural appropriateness, relevancy, and acceptability to people with dementia and their caregivers in Sweden.MethodsSemi-structured interviews and focus group discussions were conducted with key stakeholders, including healthcare professionals (n = 18), community stakeholders (n = 7), people with dementia (n = 8), and informal caregivers (n = 19). A draft of the written low-intensity behavioral activation intervention and a description of the proposed intervention delivery model were provided to participants. Open-ended questions explored the perceived relevance of the intervention, alongside needs and preferences concerning content and delivery. A manifest content analysis approach was adopted.ResultsContent analysis resulted in three categories: Content, Delivery procedures, and Illness trajectory. Results highlighted a need to consider the intervention Content via increased cultural adaptation to the Swedish context, and increasing the inclusiveness of intervention content. Delivery procedures were identified as needing to be flexible given the unpredictable nature of caring for people with dementia, with the provision of additional guidance to informal caregivers supporting the intervention. Illness trajectory was viewed as essential to consider, with the intervention regarded as suitable for those early in the dementia trajectory, alongside a need to reduce workbook text to minimize burden given dementia symptomology.ConclusionsThe intervention and proposed delivery model were generally well received by all stakeholders. We were able to identify key adaptations to enhance cultural appropriateness, relevancy, and acceptability for a currently neglected population. Results will inform a feasibility study to explore the feasibility and acceptability of the intervention and study procedures to inform the design of a future superiority randomized controlled trial.

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Added entries (persons, corporate bodies, meetings, titles ...)

  • Svedin, Frida,Doktorand,1995-Uppsala universitet,Hälsovetenskap och e-hälsa(Swepub:uu)frisv150 (author)
  • Farrand, PaulClinical Education Development and Research (CEDAR), University of Exeter, Exeter, UK (author)
  • Brantnell, Anders,1983-Uppsala universitet,Industriell teknik,Hälsovetenskap och e-hälsa(Swepub:uu)andbr819 (author)
  • von Essen, Louise,1957-Uppsala universitet,Hälsovetenskap och e-hälsa(Swepub:uu)louiesse (author)
  • Patriksson Karlsson, JohannaUppsala universitet,Hälsovetenskap och e-hälsa (author)
  • Åberg, Anna CristinaHögskolan Dalarna,Uppsala universitet,Klinisk geriatrik,Medicinsk vetenskap,Uppsala University(Swepub:du)aab (author)
  • Woodford, JoanneUppsala universitet,Hälsovetenskap och e-hälsa(Swepub:uu)joawo336 (author)
  • Uppsala universitetHälsovetenskap och e-hälsa (creator_code:org_t)

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  • In:BMC Geriatrics: Springer24:1131471-2318

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