Minors' and guardian access to and use of a national patient portal: A retrospective comparative case study of Sweden and Finland.

↓ Direkt till sidans innehåll
↓ Direkt till sidans sekundära innehåll (sidomenyn)

Search: WFRF:(Hörhammer Iiris) > Minors' and guardia...

Details
MARC

Hagström, JosefinUppsala universitet,E-hälsa och hälsodata,Hälsovetenskap och e-hälsa (author)

Minors' and guardian access to and use of a national patient portal : A retrospective comparative case study of Sweden and Finland.

Article/chapterEnglish2024

Publisher, publication year, extent ...

2024
2024
printrdacarrier

Numbers

LIBRIS-ID:oai:DiVA.org:uu-527698
https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-527698URI
https://doi.org/10.1016/j.ijmedinf.2024.105465DOI
http://kipublications.ki.se/Default.aspx?queryparsed=id:238692233URI
http://kipublications.ki.se/Default.aspx?queryparsed=id:158335814URI

Supplementary language notes

Language:English
Summary in:English

Part of subdatabase

SwePubSwePub

Classification

Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

Notes

BACKGROUND: Approaches to implementing online record access (ORA) via patient portals for minors and guardians vary internationally, as more countries continue to develop patient-accessible electronic health records (PAEHR) systems. Evidence of ORA usage and country-specific practices to allow or block minors' and guardians' access to minors' records during adolescence (i.e. access control practices) may provide a broader understanding of possible approaches and their implications for minors' confidentiality and guardian support.AIM: To describe and compare minors' and guardian proxy users' PAEHR usage in Sweden and Finland. Furthermore, to investigate the use of country-specific access control practices.METHODS: A retrospective, observational case study was conducted. Data were collected from PAEHR administration services in Sweden and Finland and proportional use was calculated based on population statistics. Descriptive statistics were used to analyze the results.RESULTS: In both Sweden and Finland, the proportion of adolescents accessing their PAEHR increased from younger to older age-groups reaching the proportion of 59.9 % in Sweden and 84.8 % in Finland in the age-group of 17-year-olds. The PAEHR access gap during early adolescence in Sweden may explain the lower proportion of users among those who enter adulthood. Around half of guardians in Finland accessed their minor children's records in 2022 (46.1 %), while Swedish guardian use was the highest in 2022 for newborn children (41.8 %), and decreased thereafter. Few, mainly guardians, applied for extended access in Sweden. In Finland, where a case-by-case approach to access control relies on healthcare professionals' (HCPs) consideration of a minor's maturity, 95.8 % of minors chose to disclose prescription information to their guardians.CONCLUSION: While age-based access control practices can hamper ORA for minors and guardians, case-by-case approach requires HCP resources and careful guidance to ensure equality between patients. Guardians primarily access minors' records during early childhood and adolescents show willingness to share their PAEHR with parents.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy hsv//eng
Adolescent health
Case study
International comparison
Patient Accessible Electronic Health Record (PAEHR)
Patient portal
Usage
Medical Informatics
Medicinsk informatik

Added entries (persons, corporate bodies, meetings, titles ...)

Hägglund, Maria,Lektor,1975-Uppsala universitet,E-hälsa och hälsodata(Swepub:uu)mha05791 (author)
Holmroos, Mari (author)
Lähteenmäki, PäiviKarolinska Institutet (author)
Hörhammer, Iiris (author)
Uppsala universitetE-hälsa och hälsodata (creator_code:org_t)

Related titles

In:International Journal of Medical Informatics1871386-50561872-8243

Internet link

Find in a library

International Journal of Medical Informatics (Search for host publication in LIBRIS)

To the university's database

Find more in SwePub

By the author/editor: Hagström, Josefi ...; Hägglund, Maria, ...; Holmroos, Mari; Lähteenmäki, Päi ...; Hörhammer, Iiris

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Health Care Serv ...

Articles in the publication: International Jo ...

By the university: Uppsala University; Karolinska Institutet

Search outside SwePub

Extend your search to:: Google; Google Book Search; Google Scholar

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

LIBRIS.kb.se