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  • Fogleman, Nicholas D.Cincinnati Children's Hospital Medical Center, Cincinnati, OH (författare)

Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective

  • Artikel/kapitelEngelska2017

Förlag, utgivningsår, omfång ...

  • Elsevier BV,2017

Nummerbeteckningar

  • LIBRIS-ID:oai:gup.ub.gu.se/257110
  • https://gup.ub.gu.se/publication/257110URI
  • https://doi.org/10.1016/j.ahj.2017.07.019DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-11582URI

Kompletterande språkuppgifter

  • Språk:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • © 2017 Elsevier Inc. Background Impaired quality of life (QOL) is associated with congenital heart disease (CHD) and country of residence; however, few studies have compared QOL in patients with differing complexities of CHD across regional populations. The current study examined regional variation in QOL outcomes in a large multinational sample of patients with a Fontan relative to patients with atrial septal defects (ASDs) and ventricular septal defects (VSDs). Methods From the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease—International Study (APPROACH-IS), 405 patients (163 Fontan and 242 ASD/VSD) across Asia, Europe, and North America provided consent for access to their medical records and completed a survey evaluating QOL (0 to 100 linear analog scale). Primary CHD diagnosis, disease complexity, surgical history, and documented history of mood and anxiety disorders were recorded. Differences in QOL, medical complications, and mood and anxiety disorders between Fontan and ASD/VSD patients, and across geographic regions, were examined using analysis of covariance. Hierarchical regression analyses were conducted to identify variables associated with the QOL ratings. Results Patients with a Fontan reported significantly lower QOL, and greater medical complications and mood and anxiety disorders relative to patients with ASD/VSD. Inpatient cardiac admissions, mood disorders, and anxiety disorders were associated with lower QOL among patients with a Fontan, and mood disorders were associated with lower QOL among patients with ASD/VSD. Regional differences for QOL were not observed in patients with a Fontan; however, significant differences were identified in patients with ASD/VSD. Conclusions Regional variation of QOL is commonplace in adults with CHD; however, it appears affected by greater disease burden. Among patients with a Fontan, regional variation of QOL is lost. Specific attempts to screen for QOL and mood and anxiety disorders among CHD patients may improve the care of patients with the greatest disease burden.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Apers, SilkeKU Leuven Department of Public Health and Primary Care, Leuven, Belgium (författare)
  • Moons, Philip,1968Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,KU Leuven Department of Public Health and Primary Care, Leuven, Belgium(Swepub:gu)xmooph (författare)
  • Morrison, StaceyCincinnati Children's Hospital Medical Center, Cincinnati, OH (författare)
  • Wittekind, Samuel G.Cincinnati Children's Hospital Medical Center, Cincinnati, OH (författare)
  • Tomlin, MarthaCincinnati Children's Hospital Medical Center, Cincinnati, OH (författare)
  • Gosney, KathyCincinnati Children's Hospital Medical Center, Cincinnati, OH (författare)
  • Sluman, Maayke A.Academic Medical Center, Department of Cardiology, Amsterdam, the Netherlands (författare)
  • Johansson, BengtUniversity Hospital of Umeå, Umeå, Sweden (författare)
  • Enomoto, JunkoDepartment of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba, Japan (författare)
  • Dellborg, Mikael,1954Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine,The Sahlgrenska Academy at University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden(Swepub:gu)xdelmi (författare)
  • Lu, Chun WeiDepartment of Pediatrics, National Taiwan University Hospital, Taipei, Taiwan (författare)
  • Subramanyan, RaghavanFrontier Lifeline Hospital, Dr. K. M. Cherian Heart Foundation, Chennai, India. (författare)
  • Luyckx, KoenSchool Psychology and Child and Adolescent Development, KU Leuven, Leuven, Belgium (författare)
  • Budts, WernerDivision of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (författare)
  • Jackson, JamieColumbus Ohio Adult Congenital Heart Disease Program, Nationwide Children's Hospital, The Ohio State College of Medicine, Columbus, OH (författare)
  • Kovacs, AdrienneToronto Congenital Cardiac Centre for Adults, Peter Munk Cardiac Centre, University Health Network, Toronto, Ontario, Canada (författare)
  • Soufi, AlexandraHospital Louis Pradel, Lyon, France (författare)
  • Eriksen, KatrineOslo University Hospital, Rikshospitalet, Oslo, Norway (författare)
  • Thomet, CorinaCenter for Congenital Heart Disease, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland (författare)
  • Berghammer, Malin,1970Högskolan Väst,Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC),Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden(Swepub:hv)malber (författare)
  • Callus, EdwardClinical Psychology Services IRCCS Policlinico San Donato, Milan, Italy (författare)
  • Fernandes, Susan M.Stanford Hospital and Clinics, Stanford, CA (författare)
  • Caruana, MaryanneDepartment of Cardiology, Mater Dei Hospital, Msida, Malta (författare)
  • Cook, Stephen C.Adult Congenital Heart Disease Center, Heart Institute, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA (författare)
  • Mackie, Andrew S.University of Alberta, Edmonton, Alberta, Canada (författare)
  • White, Kamila S.Washington University and Barnes Jewish Heart & Vascular Center, and University of Missouri, Saint Louis, MO (författare)
  • Khairy, PaulCongenital Heart Center, Montreal Heart Institute, Montreal, Quebec, Canada (författare)
  • Kutty, ShelbyUniversity of Nebraska Medical Center/Children's Hospital and Medical Center, Omaha, NE (författare)
  • Veldtman, GruschenCincinnati Children's Hospital Medical Center, Cincinnati, OH (författare)
  • Cincinnati Children's Hospital Medical Center, Cincinnati, OHKU Leuven Department of Public Health and Primary Care, Leuven, Belgium (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:American Heart Journal: Elsevier BV193, s. 55-620002-87031097-6744

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