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A disease-specific ...
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Svedbo Engström, Maria,1980Högskolan Dalarna,University of Gothenburg,Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine,Univ Gothenburg, Sahlgrenska Acad, Inst Med, Gothenburg; Dalarna Univ, Sch Educ Hlth & Social Studies, Falun,Omvårdnad
(författare)
A disease-specific questionnaire for measuring patient-reported outcomes and experiences in the Swedish National Diabetes Register: Development and evaluation of content validity, face validity, and test-retest reliability
- Artikel/kapitelEngelska2018
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Nummerbeteckningar
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LIBRIS-ID:oai:gup.ub.gu.se/264264
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https://gup.ub.gu.se/publication/264264URI
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https://doi.org/10.1016/j.pec.2017.07.016DOI
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https://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-2744URI
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https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-343873URI
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https://lup.lub.lu.se/record/2ba0031b-493d-4a7e-9c0f-1b4fbe1cd3f3URI
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http://kipublications.ki.se/Default.aspx?queryparsed=id:137540744URI
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https://urn.kb.se/resolve?urn=urn:nbn:se:du-25651URI
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Ämneskategori:ref swepub-contenttype
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Ämneskategori:art swepub-publicationtype
Anmärkningar
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Objective: To describe the development and evaluation of the content and face validity and test-retest reliability of a disease-specific questionnaire that measures patient-reported outcomes and experiences for the Swedish National Diabetes Register for adult patients who have type 1 or type 2 diabetes. Methods: In this methodological study, a questionnaire was developed over four phases using an iterative process. Expert reviews and cognitive interviews were conducted to evaluate content and face validity, and a postal survey was administered to evaluate test-retest reliability. Results: The expert reviews and cognitive interviews found the disease-specific questionnaire to be understandable, with relevant content and value for diabetes care. An item-level content validity index ranged from 0.6-1.0 and a scale content validity/average ranged from 0.7-1.0. The fourth version, with 33 items, two main parts and seven dimensions, was answered by 972 adults with type 1 and type 2 diabetes (response rate 61%). Weighted Kappa values ranged from 0.31-0.78 for type 1 diabetes and 0.27-0.74 for type 2 diabetes. Conclusions: This study describes the initial development of a disease-specific questionnaire in conjunction with the NDR. Content and face validity were confirmed and test-retest reliability was satisfactory. Practice implications: With the development of this questionnaire, the NDR becomes a clinical tool that contributes to further understanding the perspectives of adult individuals with diabetes. (c) 2017 Elsevier B.V. All rights reserved.
Ämnesord och genrebeteckningar
Biuppslag (personer, institutioner, konferenser, titlar ...)
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Leksell, JanethHögskolan Dalarna,Uppsala University,Uppsala universitet,Klinisk diabetologi och metabolism,Dalarna Univ, Sch Educ Hlth & Social Studies, Falun,Omvårdnad(Swepub:du)jle
(författare)
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Johansson, Unn-BrittKarolinska Institutet,Karolinska Institute,Sophiahemmet Högskola,Sophiahemmet Univ, Stockholm; Karolinska Inst, Dept Clin Sci & Educ, Södersjukhuset, Stockholm(Swepub:shh)unnbrittjo
(författare)
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Eeg-Olofsson, Katarina,1968Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine,Univ Gothenburg, Sahlgrenska Acad, Inst Med, Gothenburg; Sahlgrens Univ Hosp, Gothenburg,Sahlgrenska University Hospital(Swepub:gu)xeegka
(författare)
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Borg, SixtenLund University,Lunds universitet,Hälsoekonomi,Forskargrupper vid Lunds universitet,Health Economics,Lund University Research Groups(Swepub:lu)med-sxb
(författare)
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Palaszewski, B.Dept Data Management & Anal, Region Västra Götaland, Gothenburg,The County of Västra Götaland
(författare)
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Gudbjörnsdottir, Soffia,1962Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine,Univ Gothenburg, Sahlgrenska Acad, Inst Med, Gothenburg; Register Ctr Västra Götaland, Gothenburg, Sweden.,The County of Västra Götaland(Swepub:gu)xgudso
(författare)
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Göteborgs universitetInstitutionen för medicin
(creator_code:org_t)
Sammanhörande titlar
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Ingår i:Patient Education and Counseling: Elsevier BV101:1, s. 139-1460738-39911873-5134
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