Health, functionality, and social support in families with a child with a neurodevelopmental disorder - a pilot study

Cavonius-Rintahaka, DianaGothenburg University,Göteborgs universitet,Gillbergcentrum,Gillberg Neuropsychiatry Centre (author)

Introduction: Several studies have reported that having a child with a neurodevelopmental disorder (NDD) increases parental stress and that parental psychosocial functioning influences child's development and behavior. It is unclear how parents of children with NDD experience family functionality, family health and receive support and if there are differences between experiences of mothers and fathers. Methods: Families with children referred to a neurocognitive unit were invited to the study. A modified version of the FAmily Functionality, HEalth, and Social support (FAFHES) questionnaire was used. Open-ended questions were also included. Results: Parents rated their social support lower than their family functionality and family health. Family functionality correlated positively with family health. No significant differences were found between mothers' and fathers' experiences. A three-months test-retest using the FAFHES showed no significant change in ratings of family functionality, family health, and social support. Conclusions: Family functionality was connected to family health in families with a child with NDD. Mothers and fathers experienced their family health, family functionality, and received social support in similar ways.

MEDICIN OCH HÄLSOVETENSKAP Medicinska och farmaceutiska grundvetenskaper Neurovetenskaper hsv//swe
MEDICAL AND HEALTH SCIENCES Basic Medicine Neurosciences hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Psykiatri hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Psychiatry hsv//eng
parents
family health
family functionality
social support
neurodevelopmental disorders
attention-deficit/hyperactivity disorder
parents experiences
young-children
mental-health
stress
symptoms
mothers
autism
associations
adolescents

Aho, A. L. (author)
Voutilainen, A. (author)
Billstedt, Eva,1961Gothenburg University,Göteborgs universitet,Gillbergcentrum,Gillberg Neuropsychiatry Centre(Swepub:gu)xbilev (author)
Gillberg, I Carina,1949Gothenburg University,Göteborgs universitet,Gillbergcentrum,Gillberg Neuropsychiatry Centre(Swepub:gu)xgillc (author)
Göteborgs universitetGillbergcentrum (creator_code:org_t)

By the author/editor: Cavonius-Rintaha ...; Aho, A. L.; Voutilainen, A.; Billstedt, Eva, ...; Gillberg, I Cari ...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Basic Medicine; and Neurosciences

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Psychiatry

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