Health-related quality of life in adults treated for paediatric acute lymphoblastic leukaemia: a cross-sectional and longitudinal cohort study

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Aili, Katarina,PhD,1980-Högskolan i Halmstad,Akademin för hälsa och välfärd (author)

Health-related quality of life in adults treated for paediatric acute lymphoblastic leukaemia: a cross-sectional and longitudinal cohort study

Article/chapterEnglish2022

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2022-01-07
London :BMJ,2022

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LIBRIS-ID:oai:gup.ub.gu.se/312975
https://gup.ub.gu.se/publication/312975URI
https://doi.org/10.1136/bmjopen-2020-048325DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-46494URI

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Language:English

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Subject category:art swepub-publicationtype

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Introduction Acute lymphoblastic leukaemia (ALL) is the most common form of cancer in children. Although treatment methods have improved and resulted in significant improvement of survival and reduction in late effects and late mortality risk, the health-related quality of life (HRQOL) of survivors might be affected. To introduce new interventions in clinical practice with the potential to support positive HRQOL outcomes, more knowledge is needed on how HRQOL in this group is constructed and stimulated. The purpose of this study is to investigate how HRQOL is affected in adults treated for paediatric ALL, in a long-term perspective and possible factors influencing this relationship. Methods and analysis This cohort of young adult ALL survivors allows for investigations of factors influencing HRQOL outcomes on a national level. Eligible participants are obtained from the Swedish Childhood Cancer quality registry. Data collection includes both a follow-up of data collected in 2012 (n=224) and recruitment of new eligible participants to the cohort (n=601). The cohort will cover survivors of paediatric ALL, diagnosed between 1985 and 2007, at an age between 0 and 15 years. Data will be collected using validated, multidimensional, self-administered instruments, designed to measure HRQOL (SF-36), social support, sense of coherence and resilience. Ethics and dissemination The study will be carried out in accordance with the ethics permit obtained from the Swedish ethics review authority (Dnr 2019-05181). Dissemination of study results will take place through research articles and reports to the national patient organisation and the national network for consultancy nurses for this target group and to the working group for the Swedish national long-term care programme for childhood cancer. Results will also reach practical application within the follow-up clinic for adult childhood cancer survivors at Sahlgrenska Hospital in Gothenburg.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Cancer och onkologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Cancer and Oncology hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Public Health, Global Health, Social Medicine and Epidemiology hsv//eng
health-related quality of life
HRQOL
paediatric
acute lymphoblastic
leukaemia
cohort
psychometric properties
depression
children
anxiety
support
risk
General & Internal Medicine
acute lymphoblastic leukaemia

Added entries (persons, corporate bodies, meetings, titles ...)

Arvidsson, Susann,1965-Högskolan i Halmstad,Akademin för hälsa och välfärd(Swepub:hh)susarv (author)
Olsson, Maria,1964Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för onkologi,Institute of Clinical Sciences, Department of Oncology,Sahlgrenska University Hospital, Gothenburg, Sweden; Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden(Swepub:gu)xomari (author)
Jarfelt, Marianne,1962Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för onkologi,Institute of Clinical Sciences, Department of Oncology,Sahlgrenska University Hospital, Gothenburg, Sweden; Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden(Swepub:gu)xjarma (author)
Nygren, Jens M.,1976-Högskolan i Halmstad,Akademin för hälsa och välfärd(Swepub:hh)jennyg (author)
Högskolan i HalmstadAkademin för hälsa och välfärd (creator_code:org_t)

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