Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process

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Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process

Algurén, Beatrix, 1977 (author): Jönköping University,Gothenburg University,Göteborgs universitet,Institutionen för kost- och idrottsvetenskap,Department of Food and Nutrition, and Sport Science,The Jönköping Academy for Improvement of Health and Welfare,Department of Food and Nutrition, and Sport Science, Faculty of Education, University of Gothenburg, Göteborg, Sweden, and International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA

Ramirez, Jessily P (author): International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA

Salt, Matthew (author): International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA

Sillett, Nick (author): International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA

Myers, Stacie N (author): International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA

Alvarez-Cote, Albie (author): International Consortium for Health Outcomes Measurements (ICHOM), Boston, Massachusetts, USA

Butcher, Nancy J (author): Child Health Evaluative Sciences, Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

Caneo, Luiz F (author): Heart Institute, University of Sao Paulo Medical School, Sao Paulo, Brazil

Cespedes, Jaime A (author): Fundacion Cardioinfantil- Instituto de Cardiologia, Universidad del Rosario, Bogota, Colombia

Chaplin, John, 1955 (author): Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics,Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Göteborg, Sweden

Ng, Kee Chong (author): KK Women & Children's Hospital, Singapore

Garcia-Garcia, Juan J (author): Hospital Sant Joan de Déu, Barcelona, Spain

Hazelzet, Jan A (author): Department of Public Health, Erasmus Medical Centre, Rotterdam, The Netherlands

Klassen, Anne F (author): Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada

Turquetto, Aida Luiza R (author): Heart Institute, University of Sao Paulo Medical School, Sao Paulo, Brazil

Mew, Emma J (author): Child Health Evaluative Sciences, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada

Morris, Michael (author): Samuel Morris Foundation, Sydney, New South Wales, Australia, and Sydney Children's Hospital Networks, Sydney, New South Wales, Australia,Mindful Metrics, LLC, Cincinnati, Ohio, USA

Offringa, Martin (author): Child Health Evaluative Sciences, Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

O'Meara, Matthew (author): NSW Health, Sydney, New South Wales, Australia

Papp, James M (author)

Rodrigo, Carlos (author): Pediatrics, Germans Trias i Pujol University Hospital, Badalona, Catalunya, Spain, and Universitat Autònoma de Barcelona Facultat de Medicina, Bellaterra, Catalunya, Spain

Switaj, Timothy L (author): U.S. Army, Boston, Massachusetts, USA

Mayer, Catalina Valencia (author): Fundación CINDA - Universidad El Bosque, Bogotá, Colombia

Jenkins, Kathy J (author): Boston Children’s Hospital, Boston, Massachusetts, USA

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(creator_code:org_t)

2020-12-11
2021
English.
In: Archives of Disease in Childhood. - : BMJ. - 0003-9888 .- 1468-2044. ; 106:9, s. 868-876

Related links:: https://adc.bmj.com/...; show more...; https://doi.org/10.1...; https://gup.ub.gu.se...; https://doi.org/10.1...; https://urn.kb.se/re...; show less...

Journal article (peer-reviewed)

Abstract Subject headings

Objective To develop an Overall Pediatric Health Standard Set (OPH-SS) of outcome measures that captures what matters to young people and their families and recognising the biopsychosocial aspects of health for all children and adolescents regardless of health condition. Design A modified Delphi process. Setting The International Consortium for Health Outcomes Measurement convened an international Working Group (WG) comprised of 23 international experts from 12 countries in the field of paediatrics, family medicine, psychometrics as well as patient advisors. The WG participated in 11 video-conferences, through a modified Delphi process and 9 surveys between March 2018 and January 2020 consensus was reached on a final recommended health outcome standard set. By a literature review conducted in March 2018, 1136 articles were screened for clinician and patient-reported or proxy-reported outcomes. Further, 4315 clinical trials and 12 paediatric health surveys were scanned. Between November 2019 and January 2020, the final standard set was endorsed by a patient validation (n=270) and a health professional (n=51) survey. Results From a total of 63 identified outcomes, consensus was formed on a standard set of outcome measures that comprises 10 patient-reported outcomes, 5 clinician-reported measures, and 6 case-mix variables. The four developmental age-specific packages (ie, 0–5, 6–12, 13–17, 18–24 years) include either five or six measures with an average time for completion of 20min. Conclusions The OPH-SS is a starting point to drive value-based paediatric healthcare delivery from a global perspective for enhancing child and adolescent physical health and psychosocial well-being.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Pediatrics

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Public Health Gl ...

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Health Care Serv ...

Articles in the publication: Archives of Dise ...

By the university: University of Gothenburg; Jönköping University

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