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  • Moons, Philip,1968Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences (författare)

The COVID-19 pandemic as experienced by adults with congenital heart disease from Belgium, Norway, and South Korea: impact on life domains, patient-reported outcomes, and experiences with care.

  • Artikel/kapitelEngelska2022

Förlag, utgivningsår, omfång ...

  • 2021-12-20
  • Oxford University Press (OUP),2022

Nummerbeteckningar

  • LIBRIS-ID:oai:gup.ub.gu.se/311646
  • https://gup.ub.gu.se/publication/311646URI
  • https://doi.org/10.1093/eurjcn/zvab120DOI

Kompletterande språkuppgifter

  • Språk:engelska

Ingår i deldatabas

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  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • The coronavirus disease-2019 (COVID-19) pandemic poses significant challenges to many groups within societies, and especially for people with chronic health conditions. It is, however, unknown whether and how the pandemic has thus far affected the physical and mental health of patient populations. Therefore, we investigated how the pandemic affected the lives of adults with congenital heart disease (CHD), compared pre- and peri-pandemic patient-reported outcome measures (PROMs) and a patient-reported experience measure (PREM), and investigated whether having had COVID-19 impacted pre-/peri-pandemic differences of the PROMs and PREM.As part of the ongoing APPROACH-IS II project, we longitudinally surveyed 716 adults with CHD from Belgium, Norway, and South Korea. Pre-pandemic measures were administered from August 2019 to February 2020 and the peri-pandemic surveys were completed September 2020-April 2021. The majority of patients indicated that their social lives (80%), mental health (58%), and professional lives/education (51%) were negatively impacted by the pandemic. Patients felt worried (65%), were afraid (55%), reported the pandemic felt 'close' to them (53%), and were stressed (52%). However, differences between pre- and peri-pandemic scores on the PROMs and PREM were negligibly small (Cohen's d < 0.20). Across measures, 5.8-15.8% of patients demonstrated changes (improved or worsened scores) that exceeded the minimal clinically important difference. There were no difference-in-differences for PROMs and PREM between patients who did vs. did not have COVID-19.Although the COVID-19 pandemic has been disruptive in many ways, pre- to peri-pandemic changes in PROMs and PREM of adults with CHD were negligibly small.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Goossens, Eva (författare)
  • Luyckx, Koen (författare)
  • Kovacs, Adrienne H (författare)
  • Andresen, Brith (författare)
  • Moon, Ju Ryoung (författare)
  • Van De Bruaene, Alexander (författare)
  • Rassart, Jessica (författare)
  • Van Bulck, Liesbet (författare)
  • Göteborgs universitetInstitutionen för vårdvetenskap och hälsa (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:European journal of cardiovascular nursing: Oxford University Press (OUP)21:6, s. 620-6291873-19531474-5151

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