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Higher levels of un...
Higher levels of unmet support needs in spouses are associated with poorer quality of life - a descriptive cross-sectional study in the context of palliative home care
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- Norinder, Maria (författare)
- Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Capio Palliative Care, Dalen Hospital, Stockholm
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- Årestedt, Kristofer, 1968- (författare)
- Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Hållbar hälsa,Region Kalmar County, Sweden,Faculty of Health and Life Sciences, Linnaeus University, Kalmar; The Research Section, Region Kalmar County
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- Lind, Susanne, 1962- (författare)
- Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC
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- Axelsson, Lena (författare)
- Sophiahemmet Högskola,Sophiahemmet University, Sweden,Department of Nursing Science, Sophiahemmet University, Stockholm
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- Grande, Gunn (författare)
- Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, United Kingdom
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- Ewing, Gail (författare)
- Centre for Family Research, University of Cambridge, United Kingdom
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- Holm, Maja, 1982- (författare)
- Ersta Sköndal Bräcke högskola,Sophiahemmet Högskola,Ersta Sköndal Bräcke University College, Sweden;Sophiahemmet University, Sweden,Palliativt forskningscentrum, PFC,Department of Nursing Science, Sophiahemmet University, Stockholm
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- Öhlén, Joakim, 1958- (författare)
- Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences
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- Benkel, Inger (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa,Institute of Medicine, School of Public Health and Community Medicine
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- Alvariza, Anette (författare)
- Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Capio Palliative Care, Dalen Hospital, Stockholm
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(creator_code:org_t)
- 2021-08-28
- 2021
- Engelska.
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Ingår i: BMC Palliative Care. - : BioMed Central (BMC). - 1472-684X. ; 20:1
- Relaterad länk:
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https://doi.org/10.1...
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https://bmcpalliatca...
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https://shh.diva-por... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://gup.ub.gu.se...
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Abstract
Ämnesord
Stäng
- BackgroundFamily caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk for psychological distress, adverse physical symptoms and negatively affected quality of life. This study aims to explore associations between family caregivers' support needs and quality of life when caring for a spouse receiving specialized palliative home care.MethodsA descriptive cross-sectional design was used: 114 family caregivers completed the Carer Support Needs Assessment Tool (CSNAT) and the Quality of Life in Life-Threatening Illness - Family caregiver version (QOLLTI-F) and 43 of them also answered one open-ended question on thoughts about their situation. Descriptive statistics, multiple linear regression analyses, and qualitative content analysis, were used for analyses.ResultsHigher levels of unmet support needs were significantly associated with poorer quality of life. All CSNAT support domains were significantly associated with one or more quality of life domains in QOLLTI-F, with the exception of the QoL domain related to distress about the patient condition. However, family caregivers described in the open-ended question that their life was disrupted by the patient's life-threatening illness and its consequences. Family caregivers reported most the need of more support concerning knowing what to expect in the future, which they also described as worries and concerns about what the illness would mean for them and the patient further on. Lowest QoL was reported in relation to the patient's condition, and the family caregiver's own physical and emotional health.ConclusionWith a deeper understanding of the complexities of supporting family caregivers in palliative care, healthcare professionals might help to increase family caregivers' QoL by revealing their problems and concerns. Thus, tailored support is needed.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
Nyckelord
- Family caregivers
- Life-threatening illness
- Palliative care
- Quality of life
- Support needs
- Omvårdnad
- Nursing
- Family caregivers; Life-threatening illness; Palliative care; Quality of life; Support needs.
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Till lärosätets databas
- Av författaren/redakt...
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Norinder, Maria
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Årestedt, Kristo ...
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Lind, Susanne, 1 ...
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Axelsson, Lena
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Grande, Gunn
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Ewing, Gail
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visa fler...
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Holm, Maja, 1982 ...
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Öhlén, Joakim, 1 ...
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Benkel, Inger
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Alvariza, Anette
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visa färre...
- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
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och Omvårdnad
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Annan medicin oc ...
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och Övrig annan medi ...
- Artiklar i publikationen
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BMC Palliative C ...
- Av lärosätet
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Linnéuniversitetet
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Sophiahemmet Högskola
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Marie Cederschiöld högskola
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Göteborgs universitet