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Pain, depression an...
Pain, depression and anxiety in people with haemophilia from three Nordic countries: Cross-sectional survey data from the MIND study
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- Steen Carlsson, Katarina (författare)
- Lund University,Lunds universitet,Hälsoekonomi,Forskargrupper vid Lunds universitet,Health Economics,Lund University Research Groups,IHE – The Swedish Institute for Health Economics,Swedish Inst Hlth Econ, Sweden; Lund Univ, Sweden
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- Winding, B. (författare)
- Swedish Orphan Biovitrum AB, Sweden
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- Astermark, Jan (författare)
- Skåne University Hospital,Skåne Univ Hosp, Sweden
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- Baghaei, F. (författare)
- Sahlgrenska University Hospital,Sahlgrenska Academy,Sahlgrens Univ Hosp, Sweden; Univ Gothenburg, Sweden
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- Brodin, Elisabeth (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap,Institute of Neuroscience and Physiology, Department of Clinical Neuroscience,Sahlgrenska University Hospital,Sahlgrenska Academy,Sahlgrens Univ Hosp, Sweden; Univ Gothenburg, Sweden
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- Funding, Eva (författare)
- Copenhagen University Hospital,University of Copenhagen,Rigshosp, Denmark; Univ Copenhagen, Denmark
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- Holmström, Margareta (författare)
- Linköpings universitet,Linköping University,Karolinska University Hospital,Avdelningen för diagnostik och specialistmedicin,Medicinska fakulteten,Region Östergötland, Medicinska och geriatriska akutkliniken,Karolinska Univ Hosp, Sweden
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- Osterholm, K. (författare)
- Helsinki University Central Hospital,Helsinki Univ Hosp, Finland
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- Bergenstrale, S. (författare)
- Swedish Orphan Biovitrum AB, Sweden
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- Andersson, E. (författare)
- IHE – The Swedish Institute for Health Economics,Swedish Inst Hlth Econ, Sweden
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- Lethagen, Stefan (författare)
- Swedish Orphan Biovitrum AB, Sweden
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(creator_code:org_t)
- 2022-04-23
- 2022
- Engelska.
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Ingår i: Haemophilia. - : Wiley. - 1351-8216 .- 1365-2516. ; 28:4, s. 557-567
- Relaterad länk:
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http://dx.doi.org/10... (free)
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https://liu.diva-por... (primary) (Raw object)
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https://gup.ub.gu.se...
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https://doi.org/10.1...
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https://lup.lub.lu.s...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- Introduction People with haemophilia (PwH) may experience symptoms of haemophilia-related pain, depression or anxiety, which can negatively impact health-related quality of life. Aim To obtain the perspective of PwH and treaters from Sweden, Finland and Denmark on the management of haemophilia-related pain, depression and anxiety using cross-sectional survey data from the MIND study (NCT03276130). Methods PwH or their caregivers completed a survey about experiences of pain, depression and anxiety related to haemophilia, and the standard EQ-5D-5L instrument. Five investigators at haemophilia treatment centres (HTC) were sent a complementary survey containing questions about the management of pain and depression/anxiety. Results There were 343 PwH (mild: 103; moderate: 53; severe: 180; seven lacking severity information) and 71 caregiver responses. Experience of pain in the last 6 months was reported by 50% of PwH respondents and 46% of caregiver respondents. Anxiety/depression was reported by 28% of PwH respondents. Reporting of pain and anxiety/depression was associated with disease severity. Whilst 62% of PwH who had experienced pain at any time point (n = 242) felt this was adequately addressed and treated at their HTC, only 24% of those who had experienced depression/anxiety (n = 127) felt this was adequately addressed. Disease severity was negatively associated with EQ-5D-5L utility value (p < .001). In the HTC survey, 4/5 and 2/5 agreed that pain and depression/anxiety, respectively, are adequately addressed. Conclusions Pain and depression/anxiety occur more frequently with increasing haemophilia severity, with negative impacts on health-related quality of life. PwH with depression/anxiety or unaddressed pain could benefit from improved management strategies.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine (hsv//eng)
- SAMHÄLLSVETENSKAP -- Psykologi -- Tillämpad psykologi (hsv//swe)
- SOCIAL SCIENCES -- Psychology -- Applied Psychology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
Nyckelord
- haemophilia A
- haemophilia B
- mental health
- pain
- quality of life
- surveys and questionnaires
- management
- adults
- prevalence
- Hematology
- haemophilia A; haemophilia B; mental health; pain; quality of life; surveys and questionnaires
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Steen Carlsson, ...
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Winding, B.
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Astermark, Jan
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Baghaei, F.
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Brodin, Elisabet ...
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Funding, Eva
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Holmström, Marga ...
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Osterholm, K.
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Bergenstrale, S.
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Andersson, E.
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Lethagen, Stefan
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- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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- SAMHÄLLSVETENSKAP
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SAMHÄLLSVETENSKA ...
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och Psykologi
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och Tillämpad psykol ...
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Annan medicin oc ...
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och Övrig annan medi ...
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Pediatrik
- Artiklar i publikationen
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Haemophilia
- Av lärosätet
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Göteborgs universitet
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Lunds universitet
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Linköpings universitet