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Search: id:"swepub:oai:gup.ub.gu.se/337102" > The effect of inter...

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  • Johansson, Birgitta,1959-Uppsala universitet,Vårdvetenskap,Hälsovetenskap och e-hälsa,Cancerprecisionsmedicin (author)

The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial.

  • Article/chapterEnglish2024

Publisher, publication year, extent ...

  • 2024

Numbers

  • LIBRIS-ID:oai:gup.ub.gu.se/337102
  • https://gup.ub.gu.se/publication/337102URI
  • https://doi.org/10.1186/s12885-024-12273-yDOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-113318URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-526849URI

Supplementary language notes

  • Language:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Informal caregivers (ICs) of patients with cancer provide essential and mainly uncompensated care. A self-perceived preparedness to care for the patient is associated with a lower caregiver burden, described as the extent to which caregiving is perceived as having adverse effects on IC functioning and well-being. ICs' well-being is associated with patient-perceived quality of care, suggesting that interventions to optimize ICs' health are essential in order to improve patient care. Head and neck cancer (HNC) is the seventh most common malignant disease in the world. The disease and its treatment have a significant negative impact on the patient's health and quality of life. Symptoms usually interfere with swallowing, food and fluid intake, breathing, speaking, and communication. ICs frequently manage patients' symptoms and side effects, especially problems related to nutrition and oral pain, without being properly prepared. Carer eSupport is an Internet-administered intervention, based on focus group discussions with ICs, developed in collaboration with ICs and healthcare professionals, tested for feasibility, and deemed feasible. This study protocol outlines the methods of investigating the effects of Carer eSupport plus support as usual (SAU) on self-reported preparedness for caregiving, caregiver burden, and well-being in the ICs of patients with HNC, compared with ICs receiving SAU only.In this randomized controlled trial, 110 ICs of patients with HNC, undergoing radiotherapy combined with surgery and/or medical oncological treatment, will be randomized (1:1) to Carer eSupport plus SAU or SAU only. Data will be collected at baseline (before randomization), post-intervention (after 18 weeks), and 3 months after post-intervention. The primary outcome is self-reported preparedness for caregiving. Secondary outcomes are self-reported caregiver burden, anxiety, depression, and health-related quality of life. The effect of Carer eSupport plus SAU on preparedness for caregiving and secondary outcomes, compared with SAU only, will be evaluated by intention to treat analyses using linear regression models, mixed-model regression, or analysis of covariance.If proven effective, Carer eSupport has the potential to significantly improve ICs' preparedness for caregiving and their wellbeing, thereby improving patient-perceived quality of care and patient wellbeing.ClinicalTrials.gov; NCT06307418, registered 12.03.2024 (https://clinicaltrials.gov/search? term=NCT06307418).

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Cajander, Åsa,Professor,1971-Uppsala universitet,Bildanalys och människa-datorinteraktion,Datavetenskapens didaktik,Avdelningen Vi3,Institutionen för informatik och media(Swepub:uu)ascaj168 (author)
  • Ahmad, AwaisUppsala universitet,Bildanalys och människa-datorinteraktion,Avdelningen Vi3(Swepub:uu)awaah403 (author)
  • Ohlsson-Nevo, Emma,1960-Örebro universitet,Institutionen för hälsovetenskaper,Region Örebro län,Department of Surgery, Faculty of Medicine and Health, Örebro University, 701 82, Örebro, Sweden; University Health Care Research Center, Faculty of Medicine and Health, Örebro University, 701 82, Örebro, Sweden(Swepub:oru)eoo (author)
  • Fransson, PerDepartment of Nursing, Umeå University, 901 87, Umeå, Sweden (author)
  • Granström, BrithDepartment of Diagnostics and Intervention, Umeå University, 901 87, Umeå, Sweden (author)
  • von Essen, Louise,1957-Uppsala universitet,Vårdvetenskap,Institutionen för psykologi,Hälsovetenskap och e-hälsa(Swepub:uu)louiesse (author)
  • Langegård, Ulrica,1969Uppsala universitet,Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Department of Immunology, Genetics, and Pathology, Uppsala University, Rudbecklaboratoriet, 75185, Uppsala, Sweden; Department of Oncology, Sahlgrenska University Hospital, 413 45, Gothenburg, Sweden,Cancerprecisionsmedicin(Swepub:uu)ulrla472 (author)
  • Pettersson, MonaUppsala universitet,Vårdvetenskap,Centrum för forsknings- och bioetik(Swepub:uu)mopet086 (author)
  • Henriksson, AnnaUppsala universitet,Vårdvetenskap(Swepub:uu)annhe911 (author)
  • Tiblom Ehrsson, YlvaUppsala universitet,Vårdvetenskap,Öron-, näs- och halssjukdomar(Swepub:uu)ylvti687 (author)
  • Uppsala universitetVårdvetenskap (creator_code:org_t)

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  • In:BMC cancer24:11471-2407

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