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  • Boele, Florien (author)

Inequalities in access to neuro-oncology supportive care and rehabilitation: A survey of healthcare professionals' perspectives

  • Article/chapterEnglish2024

Publisher, publication year, extent ...

  • 2024

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  • LIBRIS-ID:oai:gup.ub.gu.se/338442
  • https://gup.ub.gu.se/publication/338442URI
  • https://doi.org/10.1093/nop/npae023DOI

Supplementary language notes

  • Language:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Background Neuro-oncology patients and caregivers should have equitable access to rehabilitation, supportive-, and palliative care. To investigate existing issues and potential solutions, we surveyed neuro-oncology professionals to explore current barriers and facilitators to screening patients' needs and referral to services.Methods Members of the European Association of Neuro-Oncology and the European Organisation for Research and Treatment of Cancer Brain Tumor Group (EORTC-BTG) were invited to complete a 39-item online questionnaire covering the availability of services, screening, and referral practice. Responses were analyzed descriptively; associations between sociodemographic/clinical variables and screening/referral practice were explored.Results In total, 103 participants completed the survey (67% women and 57% medical doctors). Fifteen professions from 23 countries were represented. Various rehabilitation, supportive-, and palliative care services were available yet rated "inadequate" by 21-37% of participants. Most respondents with a clinical role (n = 94) declare to screen (78%) and to refer (83%) their patients routinely for physical/cognitive/emotional issues. Survey completers (n = 103) indicated the main reasons for not screening/referring were (1) lack of suitable referral options (50%); (2) shortage of healthcare professionals (48%); and (3) long waiting lists (42%). To improve service provision, respondents suggested there is a need for education about neuro-oncology-specific issues (75%), improving the availability of services (65%) and staff (64%), developing international guidelines (64%), and strengthening the existing evidence-base for rehabilitation (60%).Conclusions Detecting and managing neuro-oncology patients' and caregivers' rehabilitation, supportive,- and palliative care needs can be improved. Better international collaboration can help address healthcare disparities.

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  • Rosenlund, Lena (author)
  • Nordentoft, Sara (author)
  • Melhuish, Sara (author)
  • Nicklin, Emma (author)
  • Rydén, IsabelleGothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap,Institute of Neuroscience and Physiology, Department of Clinical Neuroscience(Swepub:gu)xrydis (author)
  • Williamson, Aoife (author)
  • Donders-Kamphuis, Marike (author)
  • Preusser, Matthias (author)
  • Le Rhun, Emilie (author)
  • Kiesel, Barbara (author)
  • Minniti, Giuseppe (author)
  • Furtner, Julia (author)
  • Dirven, Linda (author)
  • Taphoorn, Martin (author)
  • Galldiks, Norbert (author)
  • Ruda, Roberta (author)
  • Chalmers, Anthony (author)
  • Short, Susan C. (author)
  • Piil, Karin (author)
  • Göteborgs universitetInstitutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap (creator_code:org_t)

Related titles

  • In:NEURO-ONCOLOGY PRACTICE2054-25772054-2585

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