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Inequalities in acc...
Inequalities in access to neuro-oncology supportive care and rehabilitation: A survey of healthcare professionals' perspectives
- Article/chapterEnglish2024
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LIBRIS-ID:oai:gup.ub.gu.se/338442
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https://gup.ub.gu.se/publication/338442URI
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https://doi.org/10.1093/nop/npae023DOI
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Subject category:ref swepub-contenttype
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Subject category:art swepub-publicationtype
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Background Neuro-oncology patients and caregivers should have equitable access to rehabilitation, supportive-, and palliative care. To investigate existing issues and potential solutions, we surveyed neuro-oncology professionals to explore current barriers and facilitators to screening patients' needs and referral to services.Methods Members of the European Association of Neuro-Oncology and the European Organisation for Research and Treatment of Cancer Brain Tumor Group (EORTC-BTG) were invited to complete a 39-item online questionnaire covering the availability of services, screening, and referral practice. Responses were analyzed descriptively; associations between sociodemographic/clinical variables and screening/referral practice were explored.Results In total, 103 participants completed the survey (67% women and 57% medical doctors). Fifteen professions from 23 countries were represented. Various rehabilitation, supportive-, and palliative care services were available yet rated "inadequate" by 21-37% of participants. Most respondents with a clinical role (n = 94) declare to screen (78%) and to refer (83%) their patients routinely for physical/cognitive/emotional issues. Survey completers (n = 103) indicated the main reasons for not screening/referring were (1) lack of suitable referral options (50%); (2) shortage of healthcare professionals (48%); and (3) long waiting lists (42%). To improve service provision, respondents suggested there is a need for education about neuro-oncology-specific issues (75%), improving the availability of services (65%) and staff (64%), developing international guidelines (64%), and strengthening the existing evidence-base for rehabilitation (60%).Conclusions Detecting and managing neuro-oncology patients' and caregivers' rehabilitation, supportive,- and palliative care needs can be improved. Better international collaboration can help address healthcare disparities.
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Rosenlund, Lena
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Nordentoft, Sara
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Melhuish, Sara
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Nicklin, Emma
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Rydén, IsabelleGothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap,Institute of Neuroscience and Physiology, Department of Clinical Neuroscience(Swepub:gu)xrydis
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Williamson, Aoife
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Donders-Kamphuis, Marike
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Preusser, Matthias
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Le Rhun, Emilie
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Kiesel, Barbara
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Minniti, Giuseppe
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Furtner, Julia
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Dirven, Linda
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Taphoorn, Martin
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Galldiks, Norbert
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Ruda, Roberta
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Chalmers, Anthony
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Short, Susan C.
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Piil, Karin
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Göteborgs universitetInstitutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap
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In:NEURO-ONCOLOGY PRACTICE2054-25772054-2585
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Boele, Florien
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Rosenlund, Lena
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Nordentoft, Sara
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Melhuish, Sara
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Nicklin, Emma
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Rydén, Isabelle
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Williamson, Aoif ...
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Donders-Kamphuis ...
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Preusser, Matthi ...
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Le Rhun, Emilie
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Kiesel, Barbara
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Minniti, Giusepp ...
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Furtner, Julia
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Dirven, Linda
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Taphoorn, Martin
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Galldiks, Norber ...
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Ruda, Roberta
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Chalmers, Anthon ...
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Short, Susan C.
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Piil, Karin
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Basic Medicine
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and Neurosciences
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NEURO-ONCOLOGY P ...
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University of Gothenburg