Medical problems in adolescents with myelomeningocele (MMC): an inventory of the Swedish MMC population born during 1986-1989

Olsson, Ingrid,1948Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences,Dept of Pediatrics Sahlgrenska University Hospital, Göteborg (author)

AIM: To describe the prevalence of myelomeningocele (MMC) and the medical needs of adolescents, 15-18 years, with MMC in Sweden, at a time when they are on the threshold of adulthood, leaving paediatrics. METHODS: In a retrospective study, we identified all adolescents with MMC, born during 1986-1989 and living in Sweden on July 1, 2004. An inventory was agreed upon with questions concerning their medical problems and need for medical care. RESULTS: There were 175 persons 15-18 years of age, born with MMC or lipoMMC (prevalence 3.8 per 10,000). Hydrocephalus was seen in 86%, 31% had been operated because of tethered cord syndrome, and 6% for Chiari malformation symptoms. The majority had motor impairments. Clean intermittent catheterisation for bladder emptying was used by 85%, and 59% used enemas on a regular basis because of the neurogenic bowel dysfunction. Renal dysfunction was seen in 1.7% of the adolescents. CONCLUSION: Lifelong follow-up by many specialists, among others neurologists and neurosurgeons, urotherapists and urologists, orthopaedic surgeons and orthotists, is necessary for individuals with MMC. The complex medical situation, often in combination with cognitive difficulties, makes it necessary to coordinate medical services for this increasing group of adults with multiple impairments.

Dahl, MargaretaUppsala universitet,Institutionen för kvinnors och barns hälsa,Barnneurologisk forskning/Ahlsten,Dept of Womens and Childrens Health Uppsala(Swepub:uu)margdahl (author)
Mattsson, Sven,1943-Östergötlands Läns Landsting,Linköpings universitet,Hälsouniversitetet,Pediatrik,Barn- och ungdomskliniken i Linköping(Swepub:liu)svema32 (author)
Wendelius, M.Umeå universitet,Pediatrik,Norrland University Hospital Umeå (author)
Astrom, E.Karolinska Institutet,Dept of Pediatrics Karolinska Hospital, Stockholm (author)
Westbom, LenaLund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Dept of Pediatrics University Hospital, Lund(Swepub:lu)pedi-lwe (author)
Göteborgs universitetInstitutionen för kliniska vetenskaper (creator_code:org_t)

By the author/editor: Olsson, Ingrid, ...; Dahl, Margareta; Mattsson, Sven, ...; Wendelius, M.; Astrom, E.; Westbom, Lena

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Pediatrics

By the university: University of Gothenburg; Lund University; Umeå University; Uppsala University; Karolinska Institutet; Linköping University

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