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  • Grabow, DesireeUniversitätsmedizin Mainz (author)

The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer : a cohort from 12 European countries

  • Article/chapterEnglish2018

Publisher, publication year, extent ...

  • 2018-03-02
  • Springer Science and Business Media LLC,2018
  • 15 s.

Numbers

  • LIBRIS-ID:oai:lup.lub.lu.se:1fe02cbc-a350-41b8-b196-44d3430d5f09
  • https://lup.lub.lu.se/record/1fe02cbc-a350-41b8-b196-44d3430d5f09URI
  • https://doi.org/10.1007/s10654-018-0370-3DOI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:art swepub-publicationtype
  • Subject category:ref swepub-contenttype

Notes

  • Childhood cancer survivors face risks from a variety of late effects, including cardiac events, second cancers, and late mortality. The aim of the pan-European PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies (PanCareSurFup) Consortium was to collect data on incidence and risk factors for these late effects among childhood cancer survivors in Europe. This paper describes the methodology of the data collection for the overall PanCareSurFup cohort and the outcome-related cohorts. In PanCareSurFup 13 data providers from 12 countries delivered data to the data centre in Mainz. Data providers used a single variable list that covered all three outcomes. After validity and plausibility checks data was provided to the outcome-specific working groups. In total, we collected data on 115,596 patients diagnosed with cancer from 1940 to 2011, of whom 83,333 had survived 5 years or more. Due to the eligibility criteria and other requirements different numbers of survivors were eligible for the analysis of each of the outcomes. Thus, 1014 patients with at least one cardiac event were identified from a cohort of 39,152 5-year survivors; for second cancers 3995 survivors developed at least one second cancer from a cohort of 71,494 individuals, and from the late mortality cohort of 79,441 who had survived at least 5 years, 9247 died subsequently. Through the close cooperation of many European countries and the establishment of one central data collection and harmonising centre, the project succeeded in generating the largest cohort of children with cancer to date.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Kaiser, MelanieUniversitätsmedizin Mainz (author)
  • Hjorth, LarsLund University,Lunds universitet,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Department of Clinical Sciences, Lund,Faculty of Medicine,Skåne University Hospital(Swepub:lu)pedi-lhj (author)
  • Byrne, JulianneBoyne Research Institute (author)
  • Alessi, DanielaCitta' della Salute e della Scienza Hospital-University of Turin (author)
  • Allodji, Rodrigue S.University of Paris-Saclay (author)
  • Bagnasco, FrancescaGaslini Children's Hospital (author)
  • Bárdi, EditSemmelweis University,Kepler University Hospital Linz (author)
  • Bautz, AndreaDanish Cancer Society (author)
  • Bright, Chloe J.University of Birmingham (author)
  • de Vathaire, FlorentUniversity of Paris-Saclay (author)
  • Feijen, Elizabeth A.M.Academic Medical Center of University of Amsterdam (AMC) (author)
  • Garwicz, StanislawLund University,Lunds universitet,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Department of Clinical Sciences, Lund,Faculty of Medicine,Skåne University Hospital(Swepub:lu)st6750ga (author)
  • Hagberg, OskarRegional Cancer Center South, Lund(Swepub:lu)mats-oha (author)
  • Haupt, RiccardoGaslini Children's Hospital (author)
  • Hawkins, Mike M.University of Birmingham (author)
  • Jakab, ZsuzsannaSemmelweis University (author)
  • Kremer, Leontien C.M.Princess Maxima Center for Pediatric Oncology/Hematology,Academic Medical Center of University of Amsterdam (AMC) (author)
  • Kuehni, Claudia E.University of Bern (author)
  • Kuonen, RahelUniversity of Bern (author)
  • Lähteenmäki, Päivi MariaTurku University Hospital (author)
  • Reulen, Raoul C.University of Birmingham (author)
  • Ronckers, Cécile M.Academic Medical Center of University of Amsterdam (AMC) (author)
  • Sacerdote, CarlottaCitta' della Salute e della Scienza Hospital-University of Turin (author)
  • Vu-Bezin, GiaoUniversity of Paris-Saclay (author)
  • Wesenberg, FinnOslo university hospital (author)
  • Wiebe, ThomasLund University,Lunds universitet,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Department of Clinical Sciences, Lund,Faculty of Medicine(Swepub:lu)pedi-twi (author)
  • Winter, David L.University of Birmingham (author)
  • Winther, Jeanette FalckDanish Cancer Society (author)
  • Zaletel, Lorna ZadravecInstitute of Oncology, Ljubljana (author)
  • Kaatsch, PeterUniversitätsmedizin Mainz (author)
  • Universitätsmedizin MainzInstitutionen för kliniska vetenskaper, Lund (creator_code:org_t)

Related titles

  • In:European Journal of Epidemiology: Springer Science and Business Media LLC33:3, s. 335-3490393-29901573-7284

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