Hospital-based home care for children with cancer: Feasibility and psychosocial impact on children and their families

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Hansson, HelenaCopenhagen University Hospital (author)

Hospital-based home care for children with cancer: Feasibility and psychosocial impact on children and their families

Article/chapterEnglish2013

Publisher, publication year, extent ...

2013-01-17
Wiley,2013

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LIBRIS-ID:oai:lup.lub.lu.se:37573f58-cff2-43af-aa8f-5bd382739067
https://lup.lub.lu.se/record/3635972URI
https://doi.org/10.1002/pbc.24474DOI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:art swepub-publicationtype
Subject category:ref swepub-contenttype

Notes

Background To assess the feasibility and psychosocial impact of a hospital-based home care (HBHC) program for children with cancer. Procedure A HBHC program was carried out with 51 children (018 years) with cancer to assess its feasibility in terms of satisfaction, care preferences, safety, and cost. A controlled trial was conducted to assess children's health-related quality of life (HRQOL) using the parent-reported and self-reported PedsQL Generic Core Scale and PedsQL Cancer Module, and the psychosocial impact on the family by PedsQL Family Impact Module comprising a subsample of 28 children and 43 parents in the home care group, and 47 children and 66 parents receiving standard hospital care. Results All parents in the HBHC program were satisfied and preferred home care. There were no serious adverse events associated with HBHC, and costs did not increase. When adjusting for age, gender, diagnosis and time since diagnosis, we found significant higher HRQOL scores in parent-reported physical health (P=0.04; 95% confidence interval (CI): 0.219.5) and worry (P=0.04; 95% CI: 0.420.6) in the home-care group indicating better physical health and less worry for children in the home-care group. No significant difference was found in the Family Impact Module. Conclusion This study indicates that HBHC is a feasible alternative to hospital care for children with cancer, and is greatly preferred by parents. Specific aspects of children's HRQOL may be improved with HBHC and the psychosocial burden on the family does not increase. Pediatr Blood Cancer 2013; 60: 865872. (c) 2013 Wiley Periodicals, Inc.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Pediatrik hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Pediatrics hsv//eng
chemotherapy
home care
pediatric oncology
quality of life

Added entries (persons, corporate bodies, meetings, titles ...)

Kjaergaard, Hanne (author)
Johansen, ChristofferDanish Cancer Society (author)
Hallström, IngerLund University,Lunds universitet,Barns och familjers hälsa,Forskargrupper vid Lunds universitet,Child and Family Health,Lund University Research Groups(Swepub:lu)omv-iha (author)
Christensen, Jane (author)
Madsen, Marianne (author)
Schmiegelow, KjeldCopenhagen University Hospital (author)
Copenhagen University HospitalDanish Cancer Society (creator_code:org_t)

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In:Pediatric Blood & Cancer: Wiley60:5, s. 865-8721545-50171545-5009

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