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Shaping the future ...
Shaping the future of European epilepsy research : Final meeting report from EPICLUSTER
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- Henshall, David C. (författare)
- Royal College of Surgeons in Ireland
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- Arzimanoglou, Alexis (författare)
- Lyon Civil Hospital / Hospices Civils de Lyon,University of Barcelona
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- Dedeurwaerdere, Stefanie (författare)
- UCB Pharma
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- Guerrini, Renzo (författare)
- Meyer Children's Hospital,University of Florence
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- Jozwiak, Sergiusz (författare)
- Children’s Memorial Health Institute
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- Kokaia, Merab (författare)
- Lund University,Lunds universitet,NanoLund: Centre for Nanoscience,Annan verksamhet, LTH,Lunds Tekniska Högskola,Experimentell Epilepsi,Forskargrupper vid Lunds universitet,LTH profilområde: Nanovetenskap och halvledarteknologi,LTH profilområden,Other operations, LTH,Faculty of Engineering, LTH,Experimental Epilepsy Group,Lund University Research Groups,LTH Profile Area: Nanoscience and Semiconductor Technology,LTH Profile areas,Faculty of Engineering, LTH,Skåne University Hospital
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- Lerche, Holger (författare)
- University of Tübingen,University Hospital of Tubingen
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- Pitkänen, Asla (författare)
- University of Eastern Finland
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- Ryvlin, Philippe (författare)
- Lausanne University Hospital,University of Lausanne
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- Simonato, Michele (författare)
- San Raffaele Hospital,University of Ferrara
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- Sisodiya, Sanjay M. (författare)
- University College London
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(creator_code:org_t)
- Elsevier BV, 2023
- 2023
- Engelska.
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Ingår i: Epilepsy Research. - : Elsevier BV. - 0920-1211. ; 189
- Relaterad länk:
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http://dx.doi.org/10...
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Collaboration is essential to the conduct of basic, applied and clinical research and its translation into the technologies and treatments urgently needed to improve the lives of people living with brain diseases and the health professionals who care for them. EPICLUSTER was formed in 2019 by the European Brain Research Area (EBRA) to support the coordination of epilepsy research in Europe. A key objective was to provide a platform to discuss shared research priorities by bringing together scientists and clinicians with multiple stakeholders including patient organisations and industry and the networks and infrastructures that provide healthcare and support research. Additional objectives were to facilitate access and sharing of data and biosamples, working together to ensure epilepsy is a priority for research funding, and embedding a culture of public and patient involvement (PPI) among epilepsy researchers. In this meeting report, we summarise the shared research priorities discussed by the leadership of EPICLUSTER at the recent final meeting. We also briefly review the discussion on patient and industry priorities, guidance on starting PPI for epilepsy researchers, and the sustainability of funding and infrastructures needed to ensure a comprehensive stakeholder-embedded community for epilepsy research.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
Nyckelord
- Brain
- Diagnosis
- Epilepsy
- Horizon Europe
- Public Patient Involvement
- Research agenda
- Stakeholders
- Therapeutics
Publikations- och innehållstyp
- art (ämneskategori)
- ref (ämneskategori)
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Till lärosätets databas
- Av författaren/redakt...
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Henshall, David ...
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Arzimanoglou, Al ...
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Dedeurwaerdere, ...
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Guerrini, Renzo
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Jozwiak, Sergius ...
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Kokaia, Merab
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visa fler...
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Lerche, Holger
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Pitkänen, Asla
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Ryvlin, Philippe
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Simonato, Michel ...
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Sisodiya, Sanjay ...
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visa färre...
- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Neurologi
- Artiklar i publikationen
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Epilepsy Researc ...
- Av lärosätet
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Lunds universitet