Shaping the future of European epilepsy research : Final meeting report from EPICLUSTER

Collaboration is essential to the conduct of basic, applied and clinical research and its translation into the technologies and treatments urgently needed to improve the lives of people living with brain diseases and the health professionals who care for them. EPICLUSTER was formed in 2019 by the European Brain Research Area (EBRA) to support the coordination of epilepsy research in Europe. A key objective was to provide a platform to discuss shared research priorities by bringing together scientists and clinicians with multiple stakeholders including patient organisations and industry and the networks and infrastructures that provide healthcare and support research. Additional objectives were to facilitate access and sharing of data and biosamples, working together to ensure epilepsy is a priority for research funding, and embedding a culture of public and patient involvement (PPI) among epilepsy researchers. In this meeting report, we summarise the shared research priorities discussed by the leadership of EPICLUSTER at the recent final meeting. We also briefly review the discussion on patient and industry priorities, guidance on starting PPI for epilepsy researchers, and the sustainability of funding and infrastructures needed to ensure a comprehensive stakeholder-embedded community for epilepsy research.

Arzimanoglou, AlexisUniversity of Barcelona,Lyon Civil Hospital / Hospices Civils de Lyon (author)
Dedeurwaerdere, StefanieUCB Pharma (author)
Guerrini, RenzoUniversity of Florence,Meyer Children's Hospital (author)
Jozwiak, SergiuszChildren’s Memorial Health Institute (author)
Kokaia, MerabLund University,Lunds universitet,NanoLund: Centre for Nanoscience,Annan verksamhet, LTH,Lunds Tekniska Högskola,Experimentell Epilepsi,Forskargrupper vid Lunds universitet,LTH profilområde: Nanovetenskap och halvledarteknologi,LTH profilområden,Other operations, LTH,Faculty of Engineering, LTH,Experimental Epilepsy Group,Lund University Research Groups,LTH Profile Area: Nanoscience and Semiconductor Technology,LTH Profile areas,Faculty of Engineering, LTH,Skåne University Hospital(Swepub:lu)neur-mko (author)
Lerche, HolgerUniversity Hospital of Tubingen,University of Tübingen (author)
Pitkänen, AslaUniversity of Eastern Finland (author)
Ryvlin, PhilippeUniversity of Lausanne,Lausanne University Hospital (author)
Simonato, MicheleUniversity of Ferrara,San Raffaele Hospital (author)
Sisodiya, Sanjay M.University College London (author)
Royal College of Surgeons in IrelandUniversity of Barcelona (creator_code:org_t)

By the author/editor: Henshall, David ...; Arzimanoglou, Al ...; Dedeurwaerdere, ...; Guerrini, Renzo; Jozwiak, Sergius ...; Kokaia, Merab; show more...; Lerche, Holger; Pitkänen, Asla; Ryvlin, Philippe; Simonato, Michel ...; Sisodiya, Sanjay ...; show less...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Neurology

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