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  • Fanjul, MaríaComplutense University of Madrid (author)

Tethered cord in patients affected by anorectal malformations : a survey from the ARM-Net Consortium

  • Article/chapterEnglish2017

Publisher, publication year, extent ...

  • 2017-07-03
  • Springer Science and Business Media LLC,2017

Numbers

  • LIBRIS-ID:oai:lup.lub.lu.se:9ddcacbe-4c56-4bd5-bdc0-087d82a42a77
  • https://lup.lub.lu.se/record/9ddcacbe-4c56-4bd5-bdc0-087d82a42a77URI
  • https://doi.org/10.1007/s00383-017-4105-4DOI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:art swepub-publicationtype
  • Subject category:ref swepub-contenttype

Notes

  • Purpose: The goal of this study was to determine the degree of consensus in the management of spinal cord tethering (TC) in patients with anorectal malformation (ARM) in a large cohort of European pediatric centers. Methods: A survey was sent to pediatric surgeons (one per center) members of the ARM-Net Consortium. Results: Twenty-four (86%) from ten different countries completed the survey. Overall prevalence of TC was: 21% unknown, 46% below 15, and 29% between 15 and 30%. Ninety-six agreed on screening all patients for TC regardless the type of ARM and 79% start screening at birth. Responses varied in TC definition and diagnostic tools. Fifty percent of respondents prefer ultrasound (US), 21% indicate either US or magnetic resonance (MRI) based on a pre-defined risk of presenting TC, and 21% perform both. Discrepancy exists in complementary test: 82% carry out urodynamic studies (UDS) and only 37% perform somatosensory-evoked potentials (SSEP). Prophylactic untethering is performed in only two centers (8%). Conclusions: Survey results support TC screening in all patients with ARM and conservative management of TC. There is discrepancy in the definition of TC, screening tools, and complementary test. Protocols should be developed to avoid such variability in management.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Samuk, I.Tel-Aviv University (author)
  • Bagolan, P.Bambino Gesù Children’s Hospital (author)
  • Leva, E.Maggiore Hospital Policlinico (author)
  • Sloots, C.Sophia Children's Hospital (author)
  • Giné, C.Vall d'Hebron University Hospital (author)
  • Aminoff, D.Italian Association for Anorectal Malformations (author)
  • Midrio, P.Treviso Hospital (author)
  • De Blaauw, Ivo (author)
  • Deluggi, Stefan (author)
  • Fascetti Leon, Francesco (author)
  • García, Araceli (author)
  • Giuliani, Stefano (author)
  • Grano, Caterina (author)
  • Grasshoff-Derr, Sabine (author)
  • Haanen, Michel (author)
  • Holland-Cunz, Stephan (author)
  • Jenetzky, Ekkehart (author)
  • Lacher, Martin (author)
  • Lisi, Grabiele (author)
  • Makedonsky, Igor (author)
  • Marcelis, Carlos (author)
  • Miserez, Marc (author)
  • Ozen, Onur (author)
  • Percin, Ferda (author)
  • Reutter, Heiko (author)
  • Rohleder, Stephan (author)
  • Schmiedeke, Eberhard (author)
  • Schwarzer, Nicole (author)
  • Sloots, Pim (author)
  • Till, Holger (author)
  • Van der Steeg, Lideke (author)
  • Van Rooij, Iris (author)
  • Volk, Patrick (author)
  • Wester, Tomas (author)
  • Zwink, Nadine (author)
  • Stenström, PernillaLund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Barnkirurgi,Forskargrupper vid Lunds universitet,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Pediatric surgery,Lund University Research Groups(Swepub:lu)med-pes (creator_code:cre_t)
  • Complutense University of MadridTel-Aviv University (creator_code:org_t)
  • On behalf of the ARM-Net Consortium

Related titles

  • In:Pediatric Surgery International: Springer Science and Business Media LLC33:8, s. 849-8540179-03581437-9813

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