Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe

Chevreul, KarineNational Institute for Health and Medical Research, France (författare)

Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P

Michel, MorganeNational Institute for Health and Medical Research, France (författare)
Brigham, Karen BergUniversity of Paris-Est (författare)
López-Bastida, JulioHealth Services Research on Chronic Patients Network (REDISSEC) (författare)
Linertová, RenataFundación Canaria de Investigación Sanitaria (FUNCANIS) (författare)
Oliva-Moreno, JuanUniversity of Castilla La Mancha (författare)
Serrano-Aguilar, PedroEvaluation and Planning Service at Canary Islands Health Service (SESCS) (författare)
Posada-de-la-Paz, ManuelCarlos III Health Institute (författare)
Taruscio, DomenicaItalian National Institute of Health (ISS) (författare)
Schieppati, ArrigoMario Negri Institute for Pharmacological Research (författare)
Iskrov, GeorgiMedical University of Plovdiv (författare)
Péntek, MártaCorvinus University of Budapest (författare)
von der Schulenburg, Johann Matthias GrafLeibniz University of Hannover (författare)
Kanavos, PanosLondon School of Economics and Political Science (författare)
Persson, UlfLund University,Lunds universitet,Hälsoekonomi,Forskargrupper vid Lunds universitet,Health Economics,Lund University Research Groups(Swepub:lu)tft-upe (författare)
Fattore, GiovaniBocconi University (författare)
National Institute for Health and Medical Research, FranceUniversity of Paris-Est (creator_code:org_t)

Ingår i:European Journal of Health Economics: Springer Science and Business Media LLC17, s. 7-181618-75981618-7601

Av författaren/redakt...: Chevreul, Karine; Michel, Morgane; Brigham, Karen B ...; López-Bastida, J ...; Linertová, Renat ...; Oliva-Moreno, Ju ...; visa fler...; Serrano-Aguilar, ...; Posada-de-la-Paz ...; Taruscio, Domeni ...; Schieppati, Arri ...; Iskrov, Georgi; Péntek, Márta; von der Schulenb ...; Kanavos, Panos; Persson, Ulf; Fattore, Giovani; visa färre...

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