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The PanCareFollowUp...
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van Kalsbeek, Rebecca J.Princess Maxima Center for Pediatric Oncology/Hematology
(author)
The PanCareFollowUp Care Intervention : A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer
- Article/chapterEnglish2022
Publisher, publication year, extent ...
Numbers
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LIBRIS-ID:oai:lup.lub.lu.se:bd180f1a-c6a0-4b41-8b1c-ce365350b0bf
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https://lup.lub.lu.se/record/bd180f1a-c6a0-4b41-8b1c-ce365350b0bfURI
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https://doi.org/10.1016/j.ejca.2021.10.035DOI
Supplementary language notes
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Language:English
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Summary in:English
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Subject category:art swepub-publicationtype
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Subject category:ref swepub-contenttype
Notes
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Background: Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors of childhood, adolescence and young adult (CAYA) cancer. Barriers to implementation include lack of time, knowledge, personnel and funding. Sustainable solutions are urgently needed to address the needs of CAYA cancer survivors to improve the quality of life and reduce the burden of late effects on survivors, health care systems and society. The European Union–funded PanCareFollowUp project, initiated by the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer, was established to facilitate the implementation of person-centred survivorship care across Europe. Patients and methods: The PanCareFollowUp Care Intervention was co-developed with survivors as part of the PanCareFollowUp project. It is a person-centred approach to survivorship care, supported by guidelines and with flexibility to adapt to local health care settings. The Care Intervention consists of three steps: (1) previsit completion of a Survivor Questionnaire (by the survivor) and Treatment Summary (by the health care provider [HCP]), (2) a clinic visit including shared decision-making, and (3) a follow-up call to finalise the individualised Survivorship Care Plan. Results: We developed the key components of the PanCareFollowUp Care Intervention: a PanCareFollowUp Survivor Questionnaire, Treatment Summary template, Survivorship Care Plan template, and educational materials for HCPs and survivors. Wide implementation of the PanCareFollowUp Care Intervention will be supported with a freely distributed Replication Manual on completion of the PanCareFollowUp project. Conclusions: The PanCareFollowUp Care Intervention will support the implementation of person-centred, guideline-based LTFU care in different health care settings across Europe to improve survivors’ health and well-being.
Subject headings and genre
Added entries (persons, corporate bodies, meetings, titles ...)
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Mulder, Renée L.Princess Maxima Center for Pediatric Oncology/Hematology
(author)
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Haupt, RiccardoGaslini Children's Hospital
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Muraca, MonicaGaslini Children's Hospital
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Hjorth, LarsLund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital(Swepub:lu)pedi-lhj
(author)
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Follin, CeciliaLund University,Lunds universitet,Medicin/akutsjukvård, Lund,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Endokrin,Forskargrupper vid Lunds universitet,Sena effekter efter barncancerbehandling,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Medicine, Lund,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine,Endocrine,Lund University Research Groups,Late effects after childhood cancer treatment,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital(Swepub:lu)med-cfn
(author)
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Kepak, TomasSt. Anne's University Hospital Brno
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Kepakova, KaterinaSt. Anne's University Hospital Brno
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Uyttebroeck, AnneUniversity Hospitals Leuven
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Mangelschots, MarliesUniversity Hospitals Leuven
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Falck Winther, JeanetteAarhus University Hospital,Danish Cancer Society
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Loonen, Jacqueline J.Radboud University Medical Center
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Michel, GiselaUniversity of Lucerne
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Bardi, EditKepler University Hospital Linz,St. Anna Children's Hospital
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Elmerdahl Frederiksen, LineDanish Cancer Society
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den Hartogh, JaapChildhood Cancer International (CCI)
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Mader, LuziusDanish Cancer Society
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Roser, KatharinaUniversity of Lucerne
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Schneider, CarinaChildhood Cancer International (CCI)
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Brown, Morven C.University of Newcastle upon Tyne
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Brunhofer, MelanieChildhood Cancer International (CCI)
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Göttgens, IreneRadboud University Medical Center
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Hermens, Rosella P.M.G.Radboud University Medical Center
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Kienesberger, AnitaChildhood Cancer International (CCI)
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Korevaar, Joke C.Netherlands Institute for Health Services Research
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Skinner, RoderickUniversity of Newcastle upon Tyne,Royal Victoria Infirmary
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van der Pal, Helena J.H.Princess Maxima Center for Pediatric Oncology/Hematology
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Kremer, Leontine C.M.Academic Medical Center of University of Amsterdam (AMC)
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Princess Maxima Center for Pediatric Oncology/HematologyGaslini Children's Hospital
(creator_code:org_t)
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In:European Journal of Cancer: Elsevier BV162, s. 34-440959-8049
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van Kalsbeek, Re ...
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Mulder, Renée L.
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Haupt, Riccardo
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Muraca, Monica
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Hjorth, Lars
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Follin, Cecilia
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Kepak, Tomas
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Kepakova, Kateri ...
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Uyttebroeck, Ann ...
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Mangelschots, Ma ...
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Falck Winther, J ...
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Loonen, Jacqueli ...
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Michel, Gisela
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Bardi, Edit
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Elmerdahl Freder ...
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den Hartogh, Jaa ...
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Mader, Luzius
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Roser, Katharina
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Schneider, Carin ...
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Brown, Morven C.
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Brunhofer, Melan ...
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Göttgens, Irene
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Hermens, Rosella ...
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Kienesberger, An ...
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Korevaar, Joke C ...
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Skinner, Roderic ...
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van der Pal, Hel ...
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