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  • Noten, SuzieErasmus University Medical Center,Erasmus MC Univ Med Ctr Rotterdam, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (author)

An international clinical perspective on functioning and disability in adults with cerebral palsy

  • Article/chapterEnglish2022

Publisher, publication year, extent ...

  • Elsevier BV,2022

Numbers

  • LIBRIS-ID:oai:lup.lub.lu.se:d4d2f82d-6c12-4b02-9d38-6cf6dce05c8e
  • https://lup.lub.lu.se/record/d4d2f82d-6c12-4b02-9d38-6cf6dce05c8eURI
  • https://doi.org/10.1016/j.dhjo.2022.101318DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-486041URI

Supplementary language notes

  • Language:English
  • Summary in:English

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  • Subject category:art swepub-publicationtype
  • Subject category:ref swepub-contenttype

Notes

  • Background: This international, multi-center cross-sectional study is one of the preparatory studies in the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP) to describe their functioning and health. Objective: To identify the most common problems in functioning of adults with CP presenting in healthcare services, and facilitating and hindering environmental factors, using the ICF as a reference. Methods: Participants were adults with CP who visited healthcare services in the Netherlands, Sweden, Thailand, and the United States. Structured interviews were performed using an adapted version of the generic ICF checklist 2.1a (106 categories) to rate the participant's functioning and the impact of environmental factors. Descriptive statistics were used for frequency analysis. Results: In total, 101 participants were included, of whom 69 without intellectual disability (mean age ± SD of 38.4 ± 14.7 y; 85.5% with spastic type of CP; Gross Motor Function Classification System (GMFCS) levels I–V) and 32 with intellectual disability (mean age ± SD of 25.0 ± 6.4 y; 71.9% with spastic type of CP; GMFCS levels I–V). A total of 104 ICF categories in the ICF checklist were frequently present in adults with CP: 27 body functions, 4 body structures, 53 activities and participation, and 20 environmental factors. Conclusions: The most common problems of adults with CP presenting in healthcare services are diverse and highly prevalent. The study results add the clinical perspective on relevant categories of functioning to the basis for developing the ICF Core Sets for adults with CP.

Subject headings and genre

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  • Rodby-Bousquet, ElisabetUppsala universitet,Uppsala University,Lund University,Lunds universitet,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,Centrum för klinisk forskning, Västerås,Lund Univ, Dept Clin Sci, Orthopaed, Lund, Sweden.(Swepub:uu)eliel158 (author)
  • Limsakul, ChonnanidPrince of Songkla University,Erasmus University Medical Center,Erasmus MC Univ Med Ctr Rotterdam, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Prince Songkla Univ, Dept Rehabil Med, Hat Yai, Thailand. (author)
  • Tipchatyotin, SuttipongPrince of Songkla University,Prince Songkla Univ, Dept Rehabil Med, Hat Yai, Thailand. (author)
  • Visser, FayRijndam Rehabilitation Institute,Rijndam Rehabil, Rotterdam, Netherlands. (author)
  • Grootoonk, AnnekeUniversity Medical Center Groningen,Univ Groningen, Univ Med Ctr Groningen, Ctr Rehabil, Dept Rehabil Med, Groningen, Netherlands. (author)
  • Thorpe, Deborah E.University of North Carolina,Univ N Carolina, Sch Med, Div Phys Therapy, Chapel Hill, NC 27515 USA. (author)
  • van der Slot, Wilma MAErasmus University Medical Center,Rijndam Rehabilitation Institute,Erasmus MC Univ Med Ctr Rotterdam, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (author)
  • Selb, MelissaSwiss Paraplegic Centre,ICF Res Branch, Nottwil, Switzerland.;Swiss Parapleg Res, Nottwil, Switzerland. (author)
  • Roebroeck, Marij E.Erasmus University Medical Center,Erasmus MC Univ Med Ctr Rotterdam, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (author)
  • Erasmus University Medical CenterErasmus MC Univ Med Ctr Rotterdam, Dept Rehabil Med, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Rijndam Rehabil, Rotterdam, Netherlands. (creator_code:org_t)
  • ICF Core Set for Adults with CP Study Group

Related titles

  • In:Disability and Health Journal: Elsevier BV15:31936-65741876-7583

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