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Holistic management of patients with progressive pulmonary fibrosis

Oliveira, Ana (author)
McMaster University,University of Aveiro
Fabbri, Gaia (author)
University of Siena
Gille, Thomas (author)
Assistance Publique des Hôpitaux de Paris
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Bargagli, Elena (author)
University of Siena
Duchemann, Boris (author)
Assistance Publique des Hôpitaux de Paris
Evans, Rachel (author)
University of Leicester
Pinnock, Hilary (author)
University of Edinburgh
Holland, Anne E. (author)
Monash University
Renzoni, Elisabetta (author)
Imperial College London,Royal Brompton and Harefield NHS Foundation Trust
Ekström, Magnus (author)
Lund University,Lunds universitet,Lungmedicin, allergologi och palliativ medicin,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,Andfåddhet och kronisk andningssvikt,Respiratory Medicine, Allergology, and Palliative Medicine,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine,The Institute for Palliative Care,Lund University Research Groups,Breathlessness and chronic respiratory failure
Jones, Steve (author)
Wijsenbeek, Marlies (author)
Erasmus University Medical Center
Dinh-Xuan, Anh Tuan (author)
Cochin Hospital
Vagheggini, Guido (author)
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 (creator_code:org_t)
2023
2023
English.
In: Breathe. - 1810-6838. ; 19:3
  • Research review (peer-reviewed)
Abstract Subject headings
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  • Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients’ daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient’s needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Lungmedicin och allergi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Respiratory Medicine and Allergy (hsv//eng)

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