Striving towards normality in an unpredictable situation. A qualitative interview study of how persons newly diagnosed with incurable oesophageal and gastric cancer manage everyday life

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Dalhammar, KarinLund University,Lunds universitet,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,Proaktiv, integrerad vård,The Institute for Palliative Care,Lund University Research Groups,Proactive Integrated Care (författare)

Striving towards normality in an unpredictable situation. A qualitative interview study of how persons newly diagnosed with incurable oesophageal and gastric cancer manage everyday life

Artikel/kapitelEngelska2023

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Elsevier BV,2023

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LIBRIS-ID:oai:lup.lub.lu.se:86cb110b-f62d-44e4-909b-19640815421b
https://lup.lub.lu.se/record/86cb110b-f62d-44e4-909b-19640815421bURI
https://doi.org/10.1016/j.ejon.2023.102302DOI

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Språk:engelska
Sammanfattning på:engelska

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Purpose: Getting an incurable oesophageal or gastric cancer diagnosis is a major stressful life event associated with severe physical, psychosocial and existential challenges. To provide timely and efficient support, based on patients' experiences, the aim of the study was to explore how patients newly diagnosed with incurable oesophageal and gastric cancer manage everyday life. Method: Semi-structured interviews were conducted with 12 patients 1–3 months after being diagnosed with incurable oesophageal or gastric cancer. Four participants were interviewed twice, which resulted in 16 interviews. Data were analysed with qualitative content analysis. Results: An overall theme, “Striving towards normality in an unpredictable situation”, with three related themes – “Trying to comprehend the disease”, “Dealing with the consequences of illness” and “Re-evaluating what is important in everyday life” – and seven sub-themes were identified. The participants described an unexpected and unpredictable situation, in which they strived to maintain their normal life. Amidst struggling to manage problems related to eating, fatigue and an incurable diagnosis the participants talked about the importance of focusing on the positive and normal aspects of life. Conclusions: The findings in this study point to the importance of supporting patients’ confidence and skills, particularly with regard to managing eating, so that they can hold on to their normal life as much as possible. The findings further point to the possible benefit of integrating an early palliative care approach and could provide guidance for nurses and other professionals on how to support patients post diagnosis.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Cancer och onkologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Cancer and Oncology hsv//eng
Early palliative care
Everyday life
Gastric cancer
Manage
Newly diagnosed Oesophageal cancer
Problems
Qualitative study
Symptoms

Biuppslag (personer, institutioner, konferenser, titlar ...)

Kristensson, JimmieLund University,Lunds universitet,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,Proaktiv, integrerad vård,The Institute for Palliative Care,Lund University Research Groups,Proactive Integrated Care(Swepub:lu)info-jkr (författare)
Malmström, MarleneLund University,Lunds universitet,Upper Gastrointestinal Surgery,Forskargrupper vid Lunds universitet,Bröstcancerkirurgi,Palliativt Utvecklingscentrum,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Proaktiv, integrerad vård,Lund University Research Groups,Breast Cancer Surgery,The Institute for Palliative Care,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Proactive Integrated Care,Skåne University Hospital(Swepub:lu)med-mmo (författare)
Rasmussen, Birgit H.Lund University,Lunds universitet,Institutionen för hälsovetenskaper,Medicinska fakulteten,Lungmedicin, allergologi och palliativ medicin,Sektion II,Institutionen för kliniska vetenskaper, Lund,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,Department of Health Sciences,Faculty of Medicine,Respiratory Medicine, Allergology, and Palliative Medicine,Section II,Department of Clinical Sciences, Lund,The Institute for Palliative Care,Lund University Research Groups(Swepub:lu)med-bhu (författare)
Palliativt UtvecklingscentrumForskargrupper vid Lunds universitet (creator_code:org_t)

Sammanhörande titlar

Ingår i:European Journal of Oncology Nursing: Elsevier BV631462-3889

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Av författaren/redakt...: Dalhammar, Karin; Kristensson, Jim ...; Malmström, Marle ...; Rasmussen, Birgi ...

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MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Klinisk medicin; och Cancer och onkol ...

Artiklar i publikationen: European Journal ...

Av lärosätet: Lunds universitet

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