Mapping the differences in care for 5,000 spinal muscular atrophy patients, a survey of 24 national registries in North America, Australasia and Europe

Bladen, CL (author)

Thompson, R (author)

Jackson, JM (author)

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Garland, C (author)

Wegel, C (author)

Ambrosini, A (author)

Pisano, P (author)

Walter, MC (author)

Schreiber, O (author)

Lusakowska, A (author)

Jedrzejowska, M (author)

Kostera-Pruszczyk, A (author)

van der Pol, L (author)

Wadman, RI (author)

Gredal, O (author)

Karaduman, A (author)

Topaloglu, H (author)

Yilmaz, O (author)

Matyushenko, V (author)

Rasic, VM (author)

Kosac, A (author)

Karcagi, V (author)

Garami, M (author)

Herczegfalvi, A (author)

Monges, S (author)

Moresco, A (author)

Chertkoff, L (author)

Chamova, T (author)

Guergueltcheva, V (author)

Butoianu, N (author)

Craiu, D (author)

Korngut, L (author)

Campbell, C (author)

Haberlova, J (author)

Strenkova, J (author)

Alejandro, M (author)

Jimenez, A (author)

Ortiz, GG (author)

Enriquez, GVG (author)

Rodrigues, M (author)

Roxburgh, R (author)

Dawkins, H (author)

Youngs, L (author)

Lahdetie, J (author)

Angelkova, N (author)

Saugier-Veber, P (author)

Cuisset, JM (author)

Bloetzer, C (author)

Jeannet, PY (author)

Klein, A (author)

Nascimento, A (author)

Tizzano, E (author)

Salgado, D (author)

Mercuri, E (author)

Sejersen, T (author)

Karolinska Institutet

Kirschner, J (author)

Rafferty, K (author)

Straub, V (author)

Bushby, K (author)

Verschuuren, J (author)

Beroud, C (author)

Lochmuller, H (author)

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 (creator_code:org_t)

2013-10-27

2014

English.

In: Journal of neurology. - : Springer Science and Business Media LLC. - 1432-1459 .- 0340-5354. ; 261:1, s. 152-163

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• Journal article (peer-reviewed)