Search: id:"swepub:oai:prod.swepub.kib.ki.se:144166689" >
COVID-19 in people ...
COVID-19 in people with multiple sclerosis: A global data sharing initiative
- Article/chapterEnglish2020
Publisher, publication year, extent ...
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2020-07-14
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SAGE Publications,2020
Numbers
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LIBRIS-ID:oai:prod.swepub.kib.ki.se:144166689
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http://kipublications.ki.se/Default.aspx?queryparsed=id:144166689URI
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https://doi.org/10.1177/1352458520941485DOI
Supplementary language notes
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Language:English
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Summary in:English
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Classification
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Subject category:ref swepub-contenttype
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Subject category:art swepub-publicationtype
Notes
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We need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale. Objectives: Our mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible. Methods: Numerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 data at a global scale. Results: The COVID-19 MS core data set was agreed within 48 hours. To date, 23 data collection partners are involved and the first data imports have been performed successfully. Data processing and analysis is an on-going process. Conclusions: We reached a consensus on a core data set and established data sharing processes with multiple partners to address an urgent need for information to guide clinical practice. First results show that partners are motivated to share data to attain the ultimate joint goal: better understand the effect of COVID-19 in PwMS.
Added entries (persons, corporate bodies, meetings, titles ...)
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Parciak, T
(author)
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Walton, C
(author)
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Geys, L
(author)
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Moreau, Y
(author)
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De Brouwer, E
(author)
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Raimondi, D
(author)
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Pirmani, A
(author)
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Kalincik, T
(author)
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Edan, G
(author)
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Simpson-Yap, S
(author)
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De Raedt, L
(author)
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Dauxais, Y
(author)
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Gautrais, C
(author)
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Rodrigues, PR
(author)
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McKenna, L
(author)
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Lazovski, N
(author)
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Hillert, JKarolinska Institutet
(author)
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Forsberg, LKarolinska Institutet
(author)
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Spelman, T
(author)
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McBurney, R
(author)
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Schmidt, H
(author)
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Bergmann, A
(author)
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Braune, S
(author)
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Stahmann, A
(author)
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Middleton, R
(author)
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Salter, A
(author)
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Bebo, BF
(author)
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Rojas, J
(author)
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van der Walt, A
(author)
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Butzkueven, H
(author)
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van der Mei, I
(author)
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Ivanov, R
(author)
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Hellwig, K
(author)
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do Olival, GS
(author)
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Cohen, JA
(author)
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Van Hecke, W
(author)
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Dobson, R
(author)
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Magyari, M
(author)
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Brum, DG
(author)
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Alonso, R
(author)
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Nicholas, R
(author)
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Bauer, J
(author)
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Chertcoff, A
(author)
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de Seze, J
(author)
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Louapre, C
(author)
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Comi, G
(author)
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Rijke, N
(author)
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Karolinska Institutet
(creator_code:org_t)
Related titles
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In:Multiple sclerosis (Houndmills, Basingstoke, England): SAGE Publications26:10, s. 1157-11621477-09701352-4585
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To the university's database
- By the author/editor
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Peeters, LM
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Parciak, T
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Walton, C
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Geys, L
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Moreau, Y
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De Brouwer, E
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show more...
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Raimondi, D
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Pirmani, A
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Kalincik, T
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Edan, G
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Simpson-Yap, S
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De Raedt, L
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Dauxais, Y
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Gautrais, C
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Rodrigues, PR
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McKenna, L
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Lazovski, N
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Hillert, J
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Forsberg, L
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Spelman, T
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McBurney, R
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Schmidt, H
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Bergmann, A
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Braune, S
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Stahmann, A
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Middleton, R
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Salter, A
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Bebo, BF
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Rojas, J
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van der Walt, A
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Butzkueven, H
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van der Mei, I
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Ivanov, R
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Hellwig, K
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do Olival, GS
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Cohen, JA
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Van Hecke, W
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Dobson, R
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Magyari, M
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Brum, DG
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Alonso, R
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Nicholas, R
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Bauer, J
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Chertcoff, A
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de Seze, J
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Louapre, C
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Comi, G
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Rijke, N
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show less...
- Articles in the publication
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Multiple scleros ...
- By the university
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Karolinska Institutet