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Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
- Scattoni, ML (author)
- Micai, M (author)
- Ciaramella, A (author)
- show more...
- Salvitti, T (author)
- Fulceri, F (author)
- Fatta, LM (author)
- Poustka, L (author)
- Diehm, R (author)
- Iskrov, G (author)
- Stefanov, R (author)
- Guillon, Q (author)
- Roge, B (author)
- Staines, A (author)
- Sweeney, MR (author)
- Boilson, AM (author)
- Leosdottir, T (author)
- Saemundsen, E (author)
- Moilanen, I (author)
- Ebeling, H (author)
- Yliherva, A (author)
- Parviainen, T (author)
- Tani, P (author)
- Kawa, R (author)
- Vicente, A (author)
- Rasga, C (author)
- Budisteanu, M (author)
- Dale, I (author)
- Povey, C (author)
- Flores, N (author)
- Jenaro, C (author)
- Monroy, ML (author)
- Primo, PG (author)
- Charman, T (author)
- Cramer, S (author)
- Warberg, CK (author)
- Canal-Bedia, R (author)
- Posada, M (author)
- Schendel, D (author)
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- (creator_code:org_t)
- 2021-01-27
- 2021
- English.
- In: Journal of autism and developmental disorders. - : Springer Science and Business Media LLC. - 1573-3432 .- 0162-3257. ; 51:11, s. 4129-4146
- Journal article (peer-reviewed)
Abstract
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- Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
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- art (subject category)
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- Journal of autism and developmental disorders (Search for host publication in LIBRIS)
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- By the author/editor
- Scattoni, ML
- Micai, M
- Ciaramella, A
- Salvitti, T
- Fulceri, F
- Fatta, LM
- show more...
- Poustka, L
- Diehm, R
- Iskrov, G
- Stefanov, R
- Guillon, Q
- Roge, B
- Staines, A
- Sweeney, MR
- Boilson, AM
- Leosdottir, T
- Saemundsen, E
- Moilanen, I
- Ebeling, H
- Yliherva, A
- Gissler, M
- Parviainen, T
- Tani, P
- Kawa, R
- Vicente, A
- Rasga, C
- Budisteanu, M
- Dale, I
- Povey, C
- Flores, N
- Jenaro, C
- Monroy, ML
- Primo, PG
- Charman, T
- Cramer, S
- Warberg, CK
- Canal-Bedia, R
- Posada, M
- Schendel, D
- show less...
- Articles in the publication
- Journal of autis ...
- By the university
- Karolinska Institutet
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