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The PanCareFollowUp...
The PanCareFollowUp Care Intervention : A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer
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- van Kalsbeek, Rebecca J. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology
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- Mulder, Renée L. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology
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- Haupt, Riccardo (författare)
- Gaslini Children's Hospital
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- Muraca, Monica (författare)
- Gaslini Children's Hospital
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- Hjorth, Lars (författare)
- Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
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- Follin, Cecilia (författare)
- Lund University,Lunds universitet,Medicin/akutsjukvård, Lund,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Endokrin,Forskargrupper vid Lunds universitet,Sena effekter efter barncancerbehandling,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Medicine, Lund,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine,Endocrine,Lund University Research Groups,Late effects after childhood cancer treatment,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
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- Kepak, Tomas (författare)
- St. Anne's University Hospital Brno
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- Kepakova, Katerina (författare)
- St. Anne's University Hospital Brno
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- Uyttebroeck, Anne (författare)
- University Hospitals Leuven
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- Mangelschots, Marlies (författare)
- University Hospitals Leuven
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- Falck Winther, Jeanette (författare)
- Aarhus University Hospital,Danish Cancer Society
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- Loonen, Jacqueline J. (författare)
- Radboud University Medical Center
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- Michel, Gisela (författare)
- University of Lucerne
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- Bardi, Edit (författare)
- St. Anna Children's Hospital,Kepler University Hospital Linz
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- Elmerdahl Frederiksen, Line (författare)
- Danish Cancer Society
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- den Hartogh, Jaap (författare)
- Childhood Cancer International (CCI)
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- Mader, Luzius (författare)
- Danish Cancer Society
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- Roser, Katharina (författare)
- University of Lucerne
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- Schneider, Carina (författare)
- Childhood Cancer International (CCI)
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- Brown, Morven C. (författare)
- University of Newcastle upon Tyne
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- Brunhofer, Melanie (författare)
- Childhood Cancer International (CCI)
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- Göttgens, Irene (författare)
- Radboud University Medical Center
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- Hermens, Rosella P.M.G. (författare)
- Radboud University Medical Center
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- Kienesberger, Anita (författare)
- Childhood Cancer International (CCI)
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- Korevaar, Joke C. (författare)
- Netherlands Institute for Health Services Research
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- Skinner, Roderick (författare)
- Royal Victoria Infirmary,University of Newcastle upon Tyne
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- van der Pal, Helena J.H. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology
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- Kremer, Leontine C.M. (författare)
- Academic Medical Center of University of Amsterdam (AMC)
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(creator_code:org_t)
- Elsevier BV, 2022
- 2022
- Engelska 11 s.
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Ingår i: European Journal of Cancer. - : Elsevier BV. - 0959-8049. ; 162, s. 34-44
- Relaterad länk:
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http://dx.doi.org/10... (free)
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http://www.ejcancer....
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Background: Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors of childhood, adolescence and young adult (CAYA) cancer. Barriers to implementation include lack of time, knowledge, personnel and funding. Sustainable solutions are urgently needed to address the needs of CAYA cancer survivors to improve the quality of life and reduce the burden of late effects on survivors, health care systems and society. The European Union–funded PanCareFollowUp project, initiated by the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer, was established to facilitate the implementation of person-centred survivorship care across Europe. Patients and methods: The PanCareFollowUp Care Intervention was co-developed with survivors as part of the PanCareFollowUp project. It is a person-centred approach to survivorship care, supported by guidelines and with flexibility to adapt to local health care settings. The Care Intervention consists of three steps: (1) previsit completion of a Survivor Questionnaire (by the survivor) and Treatment Summary (by the health care provider [HCP]), (2) a clinic visit including shared decision-making, and (3) a follow-up call to finalise the individualised Survivorship Care Plan. Results: We developed the key components of the PanCareFollowUp Care Intervention: a PanCareFollowUp Survivor Questionnaire, Treatment Summary template, Survivorship Care Plan template, and educational materials for HCPs and survivors. Wide implementation of the PanCareFollowUp Care Intervention will be supported with a freely distributed Replication Manual on completion of the PanCareFollowUp project. Conclusions: The PanCareFollowUp Care Intervention will support the implementation of person-centred, guideline-based LTFU care in different health care settings across Europe to improve survivors’ health and well-being.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Nyckelord
- Cancer survivorship care
- Childhood cancer survivor
- Long-term follow-up care
- Person-centred care
- Quality of life
- Shared decision-making
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van Kalsbeek, Re ...
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Mulder, Renée L.
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Haupt, Riccardo
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Muraca, Monica
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Hjorth, Lars
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Follin, Cecilia
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visa fler...
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Kepak, Tomas
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Kepakova, Kateri ...
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Uyttebroeck, Ann ...
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Mangelschots, Ma ...
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Falck Winther, J ...
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Loonen, Jacqueli ...
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Michel, Gisela
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Bardi, Edit
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Elmerdahl Freder ...
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den Hartogh, Jaa ...
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Mader, Luzius
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Roser, Katharina
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Schneider, Carin ...
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Brown, Morven C.
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Brunhofer, Melan ...
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Göttgens, Irene
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Hermens, Rosella ...
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Kienesberger, An ...
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Korevaar, Joke C ...
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Skinner, Roderic ...
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van der Pal, Hel ...
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Kremer, Leontine ...
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