Sökning: WFRF:(Colvin B) > (2007-2009) > European principles...
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000 | 02966naa a2200433 4500 | |
001 | oai:lup.lub.lu.se:0de181e7-84a9-4fb2-a224-0f41f75224af | |
003 | SwePub | |
008 | 160401s2008 | |||||||||||000 ||eng| | |
024 | 7 | a https://lup.lub.lu.se/record/11933012 URI |
024 | 7 | a https://doi.org/10.1111/j.1365-2516.2007.01625.x2 DOI |
040 | a (SwePub)lu | |
041 | a engb eng | |
042 | 9 SwePub | |
072 | 7 | a art2 swepub-publicationtype |
072 | 7 | a ref2 swepub-contenttype |
100 | 1 | a Colvin, B. T.4 aut |
245 | 1 0 | a European principles of haemophilia care |
264 | 1 | b Wiley,c 2008 |
520 | a As the management of haemophilia is complex, it is essential that those with the disorder should have ready access to a range of services provided by a multidisciplinary team of specialists. This document sets out the principles of comprehensive haemophilia care in Europe. Within each country there should be a national organization which oversees the provision of specialist Comprehensive Care Centres that provide the entire spectrum of clinical and laboratory services. Depending upon the size and geographical distribution of the population, a network of smaller haemophilia centres may also be necessary. There should be arrangements for the supply of safe clotting factor concentrates which can also be used in home treatment and prophylaxis programmes. A national register of patients is recommended along with collection of treatment statistics. As comprehensive haemophilia care is multidisciplinary by nature, the need for education and research programmes for all staff members is emphasized: Members of the Interdisciplinary Working Group not represented in the list of authors are mentioned in Section 4 of this document. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Hematologi0 (SwePub)302022 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Hematology0 (SwePub)302022 hsv//eng |
653 | a treatment | |
653 | a principles | |
653 | a management | |
653 | a haemophilia | |
653 | a haemophilia care | |
700 | 1 | a Astermark, Janu Lund University,Lunds universitet,Klinisk koagulationsmedicin, Malmö,Forskargrupper vid Lunds universitet,Clinical Coagulation, Malmö,Lund University Research Groups4 aut0 (Swepub:lu)medf-jas |
700 | 1 | a Fischer, K.4 aut |
700 | 1 | a Gringeri, A.4 aut |
700 | 1 | a Lassila, R.4 aut |
700 | 1 | a Schramm, W.4 aut |
700 | 1 | a Thomas, A.4 aut |
700 | 1 | a Ingerslev, J.4 aut |
710 | 2 | a Klinisk koagulationsmedicin, Malmöb Forskargrupper vid Lunds universitet4 org |
773 | 0 | t Haemophiliad : Wileyg 14:2, s. 361-374q 14:2<361-374x 1351-8216x 1365-2516 |
856 | 4 | u http://dx.doi.org/10.1111/j.1365-2516.2007.01625.xy FULLTEXT |
856 | 4 | u https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/j.1365-2516.2007.01625.x |
856 | 4 8 | u https://lup.lub.lu.se/record/1193301 |
856 | 4 8 | u https://doi.org/10.1111/j.1365-2516.2007.01625.x |
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