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The emotional well-...
The emotional well-being of parents with children at genetic risk for type 1 diabetes before and during participation in the POInT-study
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- Houben, Janne (författare)
- University Hospitals Leuven
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- Janssens, Martha (författare)
- University Hospitals Leuven
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- Winkler, Christiane (författare)
- Helmholtz Zentrum München
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- Besser, Rachel Elizabeth Jane (författare)
- University of Oxford
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- Dzygalo, Katarzyna (författare)
- Medical University of Warsaw
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- Fehn, Annika (författare)
- Helmholtz Zentrum München
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Hommel, Angela (författare)
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- Lange, Karin (författare)
- Hannover Medical School
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- Elding Larsson, Helena (författare)
- Lund University,Lunds universitet,Pediatrisk endokrinologi,Forskargrupper vid Lunds universitet,Paediatric Endocrinology,Lund University Research Groups,Skåne University Hospital
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- Lundgren, Markus (författare)
- Lund University,Lunds universitet,Pediatrisk endokrinologi,Forskargrupper vid Lunds universitet,Paediatric Endocrinology,Lund University Research Groups,Central Hospital Kristianstad
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Roloff, Frank (författare)
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- Snape, Matthew (författare)
- University of Oxford
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- Szypowska, Agnieszka (författare)
- Medical University of Warsaw
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- Weiss, Andreas (författare)
- Helmholtz Zentrum München
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- Zapardiel-Gonzalo, Jose (författare)
- Helmholtz Zentrum München
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Zubizarreta, Nicole (författare)
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- Ziegler, Anette Gabriele (författare)
- Technical University of Munich,Helmholtz Zentrum München
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- Casteels, Kristina (författare)
- Catholic University of Leuven,University Hospitals Leuven
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(creator_code:org_t)
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- 2022-12-20
- 2022
- Engelska 10 s.
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Ingår i: Pediatric Diabetes. - : Hindawi Limited. - 1399-543X .- 1399-5448. ; 23:8, s. 1707-1716
- Relaterad länk:
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http://dx.doi.org/10...
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Introduction: This study examined the emotional impact that parents experience when confronted with an increased genetic risk of type 1 diabetes (T1D) in their child. Population-based screening of neonates for genetic risk of chronic disease carries the risk of increased emotional burden for parents. Methods: Information was collected using a well-being questionnaire for parents of infants identified as having an increased risk for T1D in a multinational research study. Parents were asked to complete this questionnaire after they were told their child had an increased risk for T1D (Freder1k-study) and at several time points during an intervention study (POInT-study), where oral insulin was administered daily. Results: Data were collected from 2595 parents of 1371 children across five countries. Panic-related anxiety symptoms were reported by only 4.9% after hearing about their child having an increased risk. Symptoms of depression were limited to 19.4% of the parents at the result-communication visit and declined over time during the intervention study. When thinking about their child's risk for developing T1D (disease-specific anxiety), 47.2% worried, felt nervous and tense. Mothers and parents with a first-degree relative (FDR) with T1D reported more symptoms of depression and disease-specific anxiety (p < 0.001) than fathers and parents without a FDR. Conclusion: Overall, symptoms of depression and panic-related anxiety are comparable with the German population. When asked about their child's risk for T1D during the intervention study, some parents reported disease-specific anxiety, which should be kept in mind when considering population-based screening. As certain subgroups are more prone, it will be important to continue psychological screening and, when necessary, to provide support by an experienced, multidisciplinary team.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Endokrinologi och diabetes (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Endocrinology and Diabetes (hsv//eng)
Nyckelord
- emotional well-being
- genetic risk
- parents
- prevention
- type 1 diabetes
Publikations- och innehållstyp
- art (ämneskategori)
- ref (ämneskategori)
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Houben, Janne
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Janssens, Martha
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Winkler, Christi ...
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Besser, Rachel E ...
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Dzygalo, Katarzy ...
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Fehn, Annika
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visa fler...
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Hommel, Angela
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Lange, Karin
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Elding Larsson, ...
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Lundgren, Markus
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Roloff, Frank
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Snape, Matthew
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Szypowska, Agnie ...
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Weiss, Andreas
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Zapardiel-Gonzal ...
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Zubizarreta, Nic ...
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Ziegler, Anette ...
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Casteels, Kristi ...
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visa färre...
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