Integritet på undantag?: En studie av barns röst i patientlagen och patientorganisationer

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Integritet på undantag? : En studie av barns röst i patientlagen och patientorganisationer

Holmqvist, Anna (author): Ersta Sköndal Bräcke högskola,Institutionen för socialvetenskap

Schiratzki, Johanna, Professor (thesis advisor): Ersta Sköndal Bräcke högskola,Institutionen för socialvetenskap

Eriksson, Maria, Professor (thesis advisor): Ersta Sköndal Bräcke högskola,Institutionen för socialvetenskap

Leviner, Pernilla, Docent (opponent): Stockholms universitet

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ISBN 9789198580815
Stockholm : Ersta Sköndal Bräcke högskola, 2019
Swedish 325 s.
Series: Avhandlingsserie inom området Människan i välfärdssamhället, 2003-3699 ; 1

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Doctoral thesis (other academic/artistic)

Abstract Subject headings

This thesis explores discourses regarding children’s voice, in the Swedish Patient Act, as well as in Swedish patient organizations. In the Patient Act, children’s rights as patients are construed on the basis of custodians’ parental rights and the assumption that patients are competent and autonomous adults. The child is given an object position, weaker than an adult patient and subordinated to parents’ authority. Consequently, the integrity of the child is not absolute, as it is construed through an autonomy discourse and a family discourse which set boundaries for the child´s voice in the Patient Act. The family discourse combined with a mass movement discourse form the prerequisits for children’s voice in the context of patient organizations. As a consequence, patient organizations do not act as voice in relation to children’s rights as patients, in the Patient Act. Rather, interviews with representatives of patient organizations show that the parents act as voice having a child in need of health care. The position of children in the organizationsis ambiguous and, rather than having a voice of their own, children can be used in advertising campaigns to attract funding, expressing the voice of the organization. When children are used in this way by organizations, children’s integrity seem to be negotiable. The thesis shows that in both the Patient Act and the patient organizations, the integrity of the child is questioned. Children seem to be regarded as imperfect rights-holders and as imperfect members of society.This perception of the child is traced to dominant ethical perspectives from which children’s human rights have emerged. Drawing on current academic debates, analternative approach to these prevailing ethical perspectives is suggested. Instead of making rights conditional upon presumed autonomy and adulthood, rights can be perceived as relational and expressions of the mutual interdependence of humans, regardless of age and maturity. If rights are seen in this way, with children being understood not as essentially different but differently equal, then the child´s voice can have actual importance.

Subject headings

SAMHÄLLSVETENSKAP -- Annan samhällsvetenskap -- Tvärvetenskapliga studier inom samhällsvetenskap (hsv//swe)
SOCIAL SCIENCES -- Other Social Sciences -- Social Sciences Interdisciplinary (hsv//eng)

Keyword

autonomy; child in welfare society; children as patients; children’s rights; competence; health law; integrity; participation; patient law; patient organizations; welfare law; voice
Människan i välfärdssamhället, Social välfärd med inriktning mot civilsamhället
The Individual in the Welfare Society, Social Welfare and the Civil Society

Publication and Content Type

vet (subject category)
dok (subject category)

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SOCIAL SCIENCES: SOCIAL SCIENCES; and Other Social Sci ...; and Social Sciences ...

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By the university: Marie Cederschiöld högskola

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