Dementia care in eight European countries from the perspective of recipients and their caregivers

Karlsson, Staffan, 1959- (author): Health Sciences, Lund University, Lund, Sweden

Bleijlevens, Michel (author): Department of Health Services Research, Maastricht University, Maastricht, Netherlands

Roe, Brenda (author): Evidence-based Practice Research Centre, Edge Hill University, Lancashire & Personal Social Services Research Unit, University of Manchester, Manchester, United Kingdom

Saks, Kai (author): Department of Internal Medicine , University of Tartu, Tartu, Estonia

Soto Martin, Maria (author): Alzheimer’s disease Research and Clinical Center, Toulouse University Hospital, Toulouse, France

Stephan, Astrid (author): Department of Nursing Science, Witten/Herdecke University, Witten/Herdecke , Germany

Suhonen, Riita (author): Department of Nursing Science, University of Turku, Turku, Finland

Zabalegui, Adelaida (author): Nursing, Hospital Clinic of Barcelona, Barcelona, Spain

Hallberg, Ingalill R (author): Pufendorf Institute, Lund University, Lund, Sweden

(creator_code:org_t)

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Abstract Subject headings

Objectives: To investigate persons with dementia and their informal caregivers’ views of inter-sectoral information, communication and collaboration throughout the trajectory of dementia care, in eight European countriesMethods: 137 persons with dementia and their informal caregivers participated in focus group interviews. Content analysis generated a tentative model of information, communication and collaboration for people with dementia and their caregivers.Results: The core nding was that information, communication and collaboration were to be focused on the persons with dementia and the informal caregivers. Entering into the trajectory of the disease and its consequences was addressed as an important point of departure. The relation to professional care required establishing a trusting relationship, tailor-made intervention and a single person or organisation to contact. Professional knowledge and commitment, variation in service, and care adapted to needs were important.Conclusion: As focus of care is on the person with dementia and their informal caregivers, a dyadic approach seems most suitable for dementia care. A trusting relationship and a speci c person or organisation to contact seem to be indicators of best practice, as does adaptation to the needs of the person with dementia and their informal caregiver.

By the author/editor: Karlsson, Staffa ...; Bleijlevens, Mic ...; Roe, Brenda; Saks, Kai; Soto Martin, Mar ...; Stephan, Astrid; show more...; Suhonen, Riita; Zabalegui, Adela ...; Hallberg, Ingali ...; show less...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

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