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Can, Want and Try : Parents’ Viewpoints Regarding the Participation of Their Child with an Acquired Brain Injury

Thompson, Melanie (author)
Curtin University
Elliott, Catherine (author)
Curtin University
Willis, Claire (author)
University of Western Australia
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Ward, Roslyn (author)
University of Western Australia
Falkmer, Marita (author)
Jönköping University,HLK, CHILD,Curtin University
Falkmer, Torbjörn (author)
Jönköping University,HHJ. CHILD,Curtin University
Gubbay, Anna (author)
University of Western Australia
Girdler, Sonya (author)
Curtin University
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 (creator_code:org_t)
2016-07-01
2016
English.
In: PLOS ONE. - : Public Library of Science (PLoS). - 1932-6203. ; 11:7
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Background Acquired brain injury (ABI) is a leading cause of permanent disability, currently affecting 20,000 Australian children. Community participation is essential for childhood development and enjoyment, yet children with ABI can often experience barriers to participation. The factors which act as barriers and facilitators to community participation for children with an ABI are not well understood. AimTo identify the viewpoints of parents of children with an ABI, regarding the barriers and facilitators most pertinent to community participation for their child. Methods Using Q-method, 41 parents of children with moderate/severe ABI sorted 37 statements regarding barriers and facilitators to community participation. Factor analysis identified three viewpoints. Results This study identified three distinct viewpoints, with the perceived ability to participate decreasing with a stepwise trend from parents who felt their child and family "can" participate in viewpoint one, to "want" in viewpoint two and "try" in viewpoint three. Conclusions Findings indicated good participation outcomes for most children and families, however some families who were motivated to participate experienced significant barriers. The most significant facilitators included child motivation, supportive relationships from immediate family and friends, and supportive community attitudes. The lack of supportive relationships and attitudes was perceived as a fundamental barrier to community participation. Significance This research begins to address the paucity of information regarding those factors that impact upon the participation of children with an ABI in Australia. Findings have implications for therapists, service providers and community organisations.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Arbetsterapi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Occupational Therapy (hsv//eng)
SAMHÄLLSVETENSKAP  -- Sociologi -- Socialt arbete (hsv//swe)
SOCIAL SCIENCES  -- Sociology -- Social Work (hsv//eng)

Keyword

Cerebral-palsy
Q-methodology
Physical-disabilities
Youth
Intervention
Qualifier
Therapy
Working
Life

Publication and Content Type

ref (subject category)
art (subject category)

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