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Prioritizing Measur...
Prioritizing Measures That Matter Within a Person-Centered Oncology Learning Health System
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- Van Citters, Aricca D. (author)
- Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA
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- Kennedy, Alice M. (author)
- Jönköping University,The Jönköping Academy for Improvement of Health and Welfare,Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA
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- Kirkland, Kathryn B. (author)
- Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA; Section of Palliative Medicine, Department of Medicine, Dartmouth Health, Lebanon, NH, USA; Department of Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA
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- Dragnev, Konstantin H. (author)
- Department of Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA; Dartmouth Cancer Center, Dartmouth Health, Lebanon, NH, USA
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- Leach, Steven D. (author)
- Department of Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA; Dartmouth Cancer Center, Dartmouth Health, Lebanon, NH, USA; Department of Molecular and Systems Biology, Geisel School of Medicine at Dartmouth, Hanover, NH, USA
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- Buus-Frank, Madge E. (author)
- Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA; Section of Neonatology, Department of Pediatrics, Dartmouth Health, Lebanon, NH, USA
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- Malcolm, Elissa F. (author)
- Analytics Institute, Dartmouth Health, Lebanon, NH, USA
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- Holthoff, Megan M. (author)
- Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA
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- Holmes, Anne B. (author)
- Patient and Family Advisors, Dartmouth Health, Lebanon, NH, USA
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- Nelson, Eugene C. (author)
- Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA; Department of Community and Family Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA
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- Reeves, Susan A. (author)
- Dartmouth Health, Lebanon, NH, USA
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- Tosteson, Anna N. A. (author)
- Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA; Dartmouth Cancer Center, Dartmouth Health, Lebanon, NH, USA
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(creator_code:org_t)
- 2022-05-06
- 2022
- English.
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In: JNCI Cancer Spectrum. - : Oxford University Press. - 2515-5091. ; 6:3
- Related links:
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
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- BackgroundDespite progress in developing learning health systems (LHS) and associated metrics of success, a gap remains in identifying measures to guide the implementation and assessment of the impact of an oncology LHS. Our aim was to identify a balanced set of measures to guide a person-centered oncology LHS.MethodsA modified Delphi process and clinical value compass framework were used to prioritize measures for tracking LHS performance. A multidisciplinary group of 77 stakeholders, including people with cancer and family members, participated in 3 rounds of online voting followed by 50-minute discussions. Participants rated metrics on perceived importance to the LHS and discussed priorities.ResultsVoting was completed by 94% of participants and prioritized 22 measures within 8 domains. Patient and caregiver factors included clinical health (Eastern Cooperative Oncology Group Performance Status, survival by cancer type and stage), functional health and quality of life (Patient Reported Outcomes Measurement Information System [PROMIS] Global-10, Distress Thermometer, Modified Caregiver Strain Index), experience of care (advance care planning, collaboRATE, PROMIS Self-Efficacy Scale, access to care, experience of care, end-of-life quality measures), and cost and resource use (avoidance and delay in accessing care and medications, financial hardship, total cost of care). Contextual factors included team well-being (Well-being Index; voluntary staff turnover); learning culture (Improvement Readiness, compliance with Commission on Cancer quality of care measures); scholarly engagement and productivity (institutional commitment and support for research, academic productivity index); and diversity, equity, inclusion, and belonging (screening and follow-up for social determinants of health, inclusivity of staff and patients).ConclusionsThe person-centered LHS value compass provides a balanced set of measures that oncology practices can use to monitor and evaluate improvement across multiple domains.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
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Van Citters, Ari ...
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Kennedy, Alice M ...
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Kirkland, Kathry ...
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Dragnev, Konstan ...
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Leach, Steven D.
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Buus-Frank, Madg ...
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Malcolm, Elissa ...
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Holthoff, Megan ...
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Holmes, Anne B.
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Nelson, Eugene C ...
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Reeves, Susan A.
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Tosteson, Anna N ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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MEDICAL AND HEAL ...
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JNCI Cancer Spec ...
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Jönköping University