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Parents’ Experiences of Health and Needs When Supporting Their Adolescents With Cerebral PalsyDuring Transition to Adulthood
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- Björquist, Elisabet, 1959- (author)
- Lund University,Högskolan Väst,Avd för socialpedagogik och sociologi,Avdelningen för socialt arbete och socialpedagogik,Lunds universitet,BUV,Institutionen för hälsovetenskaper,Medicinska fakulteten,Barns och familjers hälsa,Forskargrupper vid Lunds universitet,Department of Health Sciences,Faculty of Medicine,Child and Family Health,Lund University Research Groups
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- Nordmark, Eva (author)
- Lund University,Lunds universitet,Institutionen för hälsovetenskaper,Medicinska fakulteten,Barns och familjers hälsa,Forskargrupper vid Lunds universitet,Människan i rörelse: hälsa och rehabilitering,Department of Health Sciences,Faculty of Medicine,Child and Family Health,Lund University Research Groups,Human Movement: health and rehabilitation,Department of Health Sciences, Faculty of Medicine, Lund University, Sweden
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- Hallström, Inger (author)
- Lund University,Lunds universitet,Institutionen för hälsovetenskaper,Medicinska fakulteten,Barns och familjers hälsa,Forskargrupper vid Lunds universitet,Department of Health Sciences,Faculty of Medicine,Child and Family Health,Lund University Research Groups,Department of Health Sciences, Faculty of Medicine, Lund University, Sweden
- (creator_code:org_t)
- 2015-12-07
- 2016
- English.
- In: Physical & Occupational Therapy in Pediatrics. - : Informa UK Limited. - 0194-2638 .- 1541-3144. ; 26:2, s. 2014-216
- Journal article (peer-reviewed)
Abstract
Subject headings
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- ABSTRACT. Aims: Parents are the primary support providers for adolescents with disabilities,their health and wellbeing is therefore of great importance when planning foryouths’ transition into adulthood. The aim of this study was to gain a deeper understandingof how parents of adolescents with cerebral palsy (CP) experience their ownhealth and wellbeing and their needs for support during the adolescent’s transition toadulthood. Methods: An inductive qualitative approach was used, including interviewswith 15 mothers and fathers to 10 adolescents with CP aged 17–18 years. Latent contentanalysis was used for analyzing the data. Results: Themain theme “Friction blisters chafingand healing during transition” illustrates the parents’ experiences. Five sub-themesformed the parents’ experiences of concerns along with sorrow and stress in life, worriesabout what was to come, their need for support, strategies for coping, and experiencesof cohesion. Conclusions: Knowledge of parents’ experiences of their health, wellbeing,and needs provide valuable information for the planning of transition for adolescentswith disabilities. Help with parents’ sorrow, stress, and worry in daily life might be facilitatedand parental health safeguarded by a navigator who can both guide and givehands-on support.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Arbetsterapi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Occupational Therapy (hsv//eng)
Keyword
- Adolescents
- cerebral palsy
- health andwellbeing
- parents’ experiences
- qualitative interviews
- transition
- Barn- och ungdomsvetenskap
- Child and Youth studies
- Folkhälsovetenskap
- Public health science
Publication and Content Type
- ref (subject category)
- art (subject category)
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