Everyday life with childhood functional constipation: A qualitative phenomenological study of parents' experiences

Flankegård, Gunilla, 1974- (author): Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus

Mörelius, Evalotte, 1965- (author): Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten,School of Nursing and Midwifery, Edith Cowan University, Australia

Rytterström, Patrik, 1970- (author): Linköpings universitet,Medicinska fakulteten,Avdelningen för omvårdnad och reproduktiv hälsa

(creator_code:org_t)

Elsevier, 2022
2022
English.
In: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 67, s. E165-E171

Related links:: https://doi.org/10.1...; show more...; https://liu.diva-por... (primary) (Raw object); https://urn.kb.se/re...; https://doi.org/10.1...; show less...

Abstract Subject headings

Childhood functional constipation (FC) is a worldwide problem with treatment regiments affecting everyday life.AimTo explore parents´ experiences of living with a child with FC and its impact on everyday family life.MethodA qualitative phenomenological interview study using a reflective lifeworld research approach. Interviews with 15 parents of otherwise healthy children aged 1–14 years affected by FC.FindingsShame is the driving force making parents put everyday life on hold. The quest for control, self-imposed loneliness, guilt, inadequacy, and frustrating battles become essential parts of everyday life to protect it from FC-related shame.ConclusionFC has as great an impact on everyday life as any childhood illness. Every part of family life is affected by FC. Continuously family support and guidance are needed.Practice implicationsHealthcare professionals need to take FC more seriously, listen to the parents and try to understand their experiences of everyday life to enable custom made care plans with the family-unit in focus. Care with clinical sensitivity might help parents deal with the attendant shame and stigmatization that stem from illness beliefs about FC.

By the author/editor: Flankegård, Guni ...; Mörelius, Evalot ...; Rytterström, Pat ...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

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