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Swedish Inflammator...
Swedish Inflammatory Bowel Disease Register (SWIBREG) : a nationwide quality register
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- Ludvigsson, Jonas F., 1969- (author)
- Karolinska Institutet
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- Andersson, Marie (author)
- Department of Internal Medicine, Södra Älvsborgs Hospital, Borås, Sweden,Sodra Alvsborgs Hosp, Dept Internal Med, Boras, Sweden
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- Bengtsson, Jonas (author)
- Department of Surgery, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden,Sahlgrens Univ Hosp, Dept Surg, Gothenburg, Sweden
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- Eberhardson, Michael (author)
- Karolinska Institutet
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- Fagerberg, Ulrika L. (author)
- Karolinska Institutet,Uppsala universitet,Centrum för klinisk forskning, Västerås
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- Grip, Olof (author)
- Department of Gastroenterology, Skåne University Hospital, Malmö, Sweden,Skane Univ Hosp, Dept Gastroenterol, Malmo, Sweden
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- Halfvarson, Jonas, 1970- (author)
- Örebro universitet,Institutionen för medicinska vetenskaper,Department of Gastroenterology,Orebro Univ, Fac Med & Hlth, Dept Gastroenterol, Orebro, Sweden
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- Hjortswang, Henrik (author)
- Linköpings universitet,Medicinska fakulteten,Avdelningen för neuro- och inflammationsvetenskap,Region Östergötland, Magtarmmedicinska kliniken,Linkoping Univ, Dept Gastroenterol, Linkoping, Sweden;Linkoping Univ, Dept Clin & Expt Med, Linkoping, Sweden
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- Jäghult, Susanna (author)
- Karolinska Institutet
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- Karling, Pontus (author)
- Umeå universitet,Avdelningen för medicin,Umea Univ, Dept Publ Hlth & Clin Med, Umea, Sweden
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- Nordenvall, Caroline (author)
- Karolinska Institutet
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- Olén, Ola (author)
- Karolinska Institutet
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- Olsson, Malin (author)
- Department of Surgery, County Council of Östergötland, Linköping, Sweden,Region Östergötland, Kirurgiska kliniken US,Cty Council Ostergotland, Dept Surg, Linkoping, Sweden
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- Rejler, Martin (author)
- Jönköping University,The Jönköping Academy for Improvement of Health and Welfare,Department of Medicine, Höglandssjukhuset Eksjö, Region Jönköping County Council, Jönköping, Sweden,Reg Jonkoping Cty Council, Hoglandssjukhuset Eksjo, Dept Med, Jonkoping, Sweden;Jonkoping Univ, Jonkoping Acad Improvement Hlth & Welf, Jonkoping, Sweden
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- Strid, Hans (author)
- Department of Internal Medicine, Södra Älvsborgs Hospital, Borås, Sweden
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- Myrelid, Pär (author)
- Linköpings universitet,Avdelningen för Kirurgi, Ortopedi och Onkologi,Medicinska fakulteten,Region Östergötland, Kirurgiska kliniken US,Cty Council Ostergotland, Dept Surg, Linkoping, Sweden;Linkoping Univ, Fac Hlth, Dept Clin & Expt Med, Linkoping, Sweden
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(creator_code:org_t)
- 2019-09-09
- 2019
- English.
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In: Scandinavian Journal of Gastroenterology. - : Taylor & Francis. - 0036-5521 .- 1502-7708. ; 54:9, s. 1089-1101
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https://doi.org/10.1...
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Abstract
Subject headings
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- Background: Inflammatory bowel disease (IBD) is a chronic, inflammatory relapsing disease with increasing incidence. IBD research and long-term follow-up of patients have, however, been hampered by lack of detailed data on disease phenotype, patient-reported outcome measures, Physician Global Assessment, disease activity, and hospital-administered drugs.Aim: To review the Swedish IBD quality register (SWIBREG).Methods: Review of SWIBREG including questionnaire data from users and patients.Results: SWIBREG was launched in 2005, and as of April 2019, contains 46,400 patients with IBD (Crohn's disease: n = 15,705, ulcerative colitis: n = 21,540, IBD unclassified and other colitis (including e.g., microscopic colitis): n = 9155). Of these IBD patients, 7778 had been diagnosed in childhood (16.8%). Earlier research has shown that combining SWIBREG and the Swedish National Patient Register (NPR) yields a positive predictive value of 100% (95%CI = 95-100%) for having a diagnosis of IBD. Moreover, out of all patients in the NPR with a diagnosis of IBD plus either IBD-related surgery or immunomodulatory/biological treatment during the past 18 months, SWIBREG covers 59.0%. SWIBREG records not only information on conventional therapies but also on biological treatment, surgery, smoking, disease activity, patient-reported outcome measures (PROMs), and patient-experienced measures (PREMs). Data are presented through a graphical decision support system.Conclusion: SWIBREG benefits patients with IBD, and offers an ideal opportunity for healthcare personnel and researchers to examine disease phenotype and activity, PROMs/PREMs, and hospital-administered drugs in patients with IBD.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Gastroenterologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Gastroenterology and Hepatology (hsv//eng)
Keyword
- Crohn's disease
- Inflammatory bowel disease
- patient reported experience measure
- patient reported outcome measure
- quality of life
- ulcerative colitis
Publication and Content Type
- ref (subject category)
- for (subject category)
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- By the author/editor
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Ludvigsson, Jona ...
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Andersson, Marie
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Bengtsson, Jonas
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Eberhardson, Mic ...
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Fagerberg, Ulrik ...
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Grip, Olof
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show more...
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Halfvarson, Jona ...
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Hjortswang, Henr ...
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Jäghult, Susanna
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Karling, Pontus
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Nordenvall, Caro ...
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Olén, Ola
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Olsson, Malin
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Rejler, Martin
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Strid, Hans
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Myrelid, Pär
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Gastroenterology ...
- Articles in the publication
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Scandinavian Jou ...
- By the university
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Örebro University
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Umeå University
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Jönköping University
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Linköping University
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Uppsala University
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Karolinska Institutet