id:"swepub:oai:gup.ub.gu.se/217136"
Sökning: id:"swepub:oai:gup.ub.gu.se/217136" > Forty Years of Qual...
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| Fältnamn | Indikatorer | Metadata |
|---|---|---|
| 000 | 03563naa a2200337 4500 | |
| 001 | oai:gup.ub.gu.se/217136 | |
| 003 | SwePub | |
| 008 | 240910s2015 | |||||||||||000 ||eng| | |
| 024 | 7 | a https://gup.ub.gu.se/publication/2171362 URI |
| 024 | 7 | a https://doi.org/10.1016/j.ijcard.2015.05.0702 DOI |
| 040 | a (SwePub)gu | |
| 041 | a eng | |
| 042 | 9 SwePub | |
| 072 | 7 | a ref2 swepub-contenttype |
| 072 | 7 | a for2 swepub-publicationtype |
| 100 | 1 | a Bratt, Ewa-Lena,d 1970u Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences4 aut0 (Swepub:gu)xbraew |
| 245 | 1 0 | a Forty Years of Quality-of-Life Research in Congenital Heart Disease: Temporal Trends in Conceptual and Methodological Rigor |
| 264 | 1 | b Elsevier BV,c 2015 |
| 520 | a Background: The first study on quality of life (QoL) in patients with congenital heart disease was published 40 years ago. Since then, the number of QoL articles on these patients has grown exponentially. We conducted a systematic literature review of all empirical studies on QoL in patients with congenital heart disease published since 1974, with the aim of determining the range of conceptual and methodological rigor of studies and identifying temporal trends in these parameters. Methods: PubMed, Embase, and Cinahl were searched for empirical studies addressing QoL in children, adolescents, or adults with congenital heart disease, published between January 1, 1974, and December 31, 2014. We applied 10 review criteria that were previously developed by Gill and Feinstein in 1994 and further refined by Moons et al. in 2004. Overall, 234 articles were reviewed. Results: We found slight but non-significant temporal improvements in conceptual and methodological rigor and in use of assessment methods. This indicates a trend toward a more professional and exacting approach in QoL assessments. However, the majority of articles still had substantial conceptual and methodological deficits. Furthermore, we observed that citation of the publications of Gill and Feinstein and Moons et al. in published QoL research is associated with higher quality scores, suggesting that these articles have a positive impact on conceptual and methodological caliber. Conclusion: Despite 40 years of QoL research in this field, this review shows that major weaknesses in methodological rigor remain highly prevalent, which may make QoL studies inconclusive. | |
| 650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Omvårdnad0 (SwePub)303052 hsv//swe |
| 650 | 7 | a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Nursing0 (SwePub)303052 hsv//eng |
| 650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskap0 (SwePub)3032 hsv//swe |
| 650 | 7 | a MEDICAL AND HEALTH SCIENCESx Health Sciences0 (SwePub)3032 hsv//eng |
| 653 | a Quality of Life; Review; Heart Defect | |
| 653 | a Congenital; Adolescent; Health Services Research/methods | |
| 700 | 1 | a Moons, Philip,d 1968u Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences4 aut0 (Swepub:gu)xmooph |
| 710 | 2 | a Göteborgs universitetb Institutionen för vårdvetenskap och hälsa4 org |
| 773 | 0 | t International Journal of Cardiologyd : Elsevier BVg 195, s. 1-6q 195<1-6x 0167-5273 |
| 856 | 4 | u https://lirias.kuleuven.be/bitstream/123456789/500247/1/Forty%20years%20of%20QoL%20in%20CHD%20-%20postprint.pdf |
| 856 | 4 8 | u https://gup.ub.gu.se/publication/217136 |
| 856 | 4 8 | u https://doi.org/10.1016/j.ijcard.2015.05.070 |
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