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Self-reported activ...
Self-reported activity and functioning in daily life; the perspective of persons with haemophilia living in Sweden
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- Brodin, Elisabeth (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering,Institute of Neuroscience and Physiology, Department of Clinical Neuroscience and Rehabilitation
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Baghaei, Fariba, 1964 (författare)
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- Stibrant Sunnerhagen, Katharina, 1957 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering,Institute of Neuroscience and Physiology, Department of Clinical Neuroscience and Rehabilitation
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(creator_code:org_t)
- 2015-02-17
- 2015
- Engelska.
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Ingår i: European Journal of Haematology. - : Wiley. - 0902-4441. ; 95:4, s. 336-341
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Abstract
Ämnesord
Stäng
- ObjectivesTo investigate the self-estimated function, activity and participation in daily life of persons with severe or moderate haemophilia A and B (PWH) living in Sweden. The secondary aim was to explore the differences between participants with early treatment onset and later. MethodsThe Haemophilia Activity List (HAL), Arthritis Impact Measurement Scales (AIMS2) and Impact on Participation and Autonomy (IPA-S) were distributed by mail to 225 PWH with an invitation to participate in the study. The median and min-max are given for the different domains; a higher value indicates more disability. ResultsEighty-four PWH (18-80years) participated. The HAL indicated more problems in the legs [40 (0-100)] than in self-care [4 (0-92)] and household tasks [3 (0-87)]. The AIMS2 scores confirmed this (physical activity 12 (0-64.5) as well as somewhat reduced autonomy outdoors [IPA-S 17.5 (0-90)]. More limitations in daily life were reported by participants with later treatment onset. ConclusionThe PWH reported greater disability in the domains related to activities using the lower extremities compared to domains related to upper extremity. This study pointed out the need of using different questionnaires to capture patients own perspective and as useful supplement to other clinical assessment instruments.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine (hsv//eng)
Nyckelord
- haemophilia
- haemophilia activity list
- arthritis impact measurement scales 2
- impact on participation
- autonomy questionnaire
- physical-activity
- activities list
- factor-viii
- factor-ix
- participation
- impact
- prophylaxis
- abilities
- arthritis
- Hematology
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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