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Home care of a chil...
Home care of a child dying of a malignancy and parental awareness of a child's impending death
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- Surkan, P. J. (author)
- Karolinska institutet
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- Dickman, P. W. (author)
- Karolinska Institutet
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- Steineck, Gunnar, 1952 (author)
- Karolinska Institutet,Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences,Karolinska institutet
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- Onelov, E. (author)
- Karolinska Institutet
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- Kreicbergs, Ulrika (author)
- Karolinska Institutet
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(creator_code:org_t)
- 2016-12-20
- 2006
- English.
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In: Palliative Medicine. - : SAGE Publications. - 0269-2163 .- 1477-030X. ; 20:3, s. 161-9
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Abstract
Subject headings
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- In this population-based study, we found that parents who are aware that their child will die from a malignancy are more likely to care for their child at home during the child's last month of life compared to parents who are not aware. End-of-life home care was comparable to hospital care for satisfactory pain relief, access to pain relief and access to medications for other physical symptoms. Using an anonymous postal questionnaire, we obtained information from 449 parents in Sweden who had lost a child due to a malignancy between 1992 and 1997, 4 to 9 years before participating in our study. The prevalence of dying at home and being cared for at home during the last month of life was 23.7% when parents realized intellectually more than 1 month in advance that the child would die (versus 12% who did not), 28.7% for parents who sensed that the child was aware of his or her imminent death (versus 7.8% who did not sense this) and 21.9% for those who received information that the child's illness was incurable (versus 9.4% who did not receive the information). Prevalence of children's unrelieved pain was 11.6% for those receiving home care and 15.3% for those receiving care outside the home.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
Keyword
- Adolescent
- Adult
- Attitude to Death
- Child
- Female
- Home Nursing/psychology
- Humans
- Male
- Neoplasms/nursing/*psychology/therapy
- Odds Ratio
- Palliative Care
- Parents/*psychology
- Terminal Care/*psychology
- *Terminally Ill
- Awareness
Publication and Content Type
- ref (subject category)
- art (subject category)
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