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Social/economic cos...
Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe
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- Chevreul, Karine (author)
- National Institute for Health and Medical Research, France
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- Michel, Morgane (author)
- National Institute for Health and Medical Research, France
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- Brigham, Karen Berg (author)
- University of Paris-Est
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- López-Bastida, Julio (author)
- Health Services Research on Chronic Patients Network (REDISSEC)
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- Linertová, Renata (author)
- Fundación Canaria de Investigación Sanitaria (FUNCANIS)
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- Oliva-Moreno, Juan (author)
- University of Castilla La Mancha
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- Serrano-Aguilar, Pedro (author)
- Evaluation and Planning Service at Canary Islands Health Service (SESCS)
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- Posada-de-la-Paz, Manuel (author)
- Carlos III Health Institute
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- Taruscio, Domenica (author)
- Italian National Institute of Health (ISS)
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- Schieppati, Arrigo (author)
- Mario Negri Institute for Pharmacological Research
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- Iskrov, Georgi (author)
- Medical University of Plovdiv
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- Péntek, Márta (author)
- Corvinus University of Budapest
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- von der Schulenburg, Johann Matthias Graf (author)
- Leibniz University of Hannover
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- Kanavos, Panos (author)
- London School of Economics and Political Science
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- Persson, Ulf (author)
- Lund University,Lunds universitet,Hälsoekonomi,Forskargrupper vid Lunds universitet,Health Economics,Lund University Research Groups
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- Fattore, Giovani (author)
- Bocconi University
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(creator_code:org_t)
- 2016-04-08
- 2016
- English 12 s.
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In: European Journal of Health Economics. - : Springer Science and Business Media LLC. - 1618-7598 .- 1618-7601. ; 17, s. 7-18
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http://dx.doi.org/10...
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
Subject headings
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- Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Keyword
- Costs and cost analysis
- Cystic fibrosis
- Economic burden
- Health-related quality of life
Publication and Content Type
- art (subject category)
- ref (subject category)
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- By the author/editor
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Chevreul, Karine
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Michel, Morgane
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Brigham, Karen B ...
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López-Bastida, J ...
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Linertová, Renat ...
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Oliva-Moreno, Ju ...
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show more...
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Serrano-Aguilar, ...
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Posada-de-la-Paz ...
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Taruscio, Domeni ...
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Schieppati, Arri ...
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Iskrov, Georgi
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Péntek, Márta
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von der Schulenb ...
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Kanavos, Panos
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Persson, Ulf
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Fattore, Giovani
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show less...
- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Health Care Serv ...
- Articles in the publication
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European Journal ...
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Lund University