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Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe

Chevreul, Karine (author)
National Institute for Health and Medical Research, France
Michel, Morgane (author)
National Institute for Health and Medical Research, France
Brigham, Karen Berg (author)
University of Paris-Est
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López-Bastida, Julio (author)
Health Services Research on Chronic Patients Network (REDISSEC)
Linertová, Renata (author)
Fundación Canaria de Investigación Sanitaria (FUNCANIS)
Oliva-Moreno, Juan (author)
University of Castilla La Mancha
Serrano-Aguilar, Pedro (author)
Evaluation and Planning Service at Canary Islands Health Service (SESCS)
Posada-de-la-Paz, Manuel (author)
Carlos III Health Institute
Taruscio, Domenica (author)
Italian National Institute of Health (ISS)
Schieppati, Arrigo (author)
Mario Negri Institute for Pharmacological Research
Iskrov, Georgi (author)
Medical University of Plovdiv
Péntek, Márta (author)
Corvinus University of Budapest
von der Schulenburg, Johann Matthias Graf (author)
Leibniz University of Hannover
Kanavos, Panos (author)
London School of Economics and Political Science
Persson, Ulf (author)
Lund University,Lunds universitet,Hälsoekonomi,Forskargrupper vid Lunds universitet,Health Economics,Lund University Research Groups
Fattore, Giovani (author)
Bocconi University
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 (creator_code:org_t)
2016-04-08
2016
English 12 s.
In: European Journal of Health Economics. - : Springer Science and Business Media LLC. - 1618-7598 .- 1618-7601. ; 17, s. 7-18
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Objectives: Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe. Methods: A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden. Results: A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)

Keyword

Costs and cost analysis
Cystic fibrosis
Economic burden
Health-related quality of life

Publication and Content Type

art (subject category)
ref (subject category)

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