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Sökning: onr:"swepub:oai:DiVA.org:hj-35268" > Developing guidelin...

LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00006305nam a2200457 4500
001oai:DiVA.org:hj-35268
003SwePub
008170328s2017 | |||||||||||000 ||eng|
020 a 9789185835782q print
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-352682 URI
040 a (SwePub)hj
041 a engb eng
042 9 SwePub
072 7a vet2 swepub-contenttype
072 7a dok2 swepub-publicationtype
1001 a Gimbler Berglund, Ingalillu Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD4 aut0 (Swepub:hj)GBIn
2451 0a Developing guidelines in nursing care of children with Autism Spectrum Disorder in high technology health care settings
264 1a Jönköping :b Jönköping University, School of Health and Welfare,c 2017
300 a 98 s.
338 a electronic2 rdacarrier
4900 a Dissertation Series. School of Health and Welfare,x 1654-3602 ;v 079
520 a Introduction. The high technology environment such as a radiology and anaesthesia department in a typical health care setting can many times be a frightening environment for children. Children with neurodevelopmental disorders, such as Autism Spectrum Disorder (ASD), have problems with communication and social interaction. They are dependent on routines and can have higher sensitivity to sensory stimuli than other children. These children are one group who constitutes special challenges in reducing anxiety and creating participation in a high technology environment. This can make them prone to frightening encounters in health care settings if not cared for with special consideration.Aim: The overall aim of this thesis was to audit and enhance the care of children in a high technology environment in the health care system with a focus on children with Autism Spectrum Disorder.Methods: A descriptive design was used with both qualitative and quantitative methods. In Study I, 32 nurse anaesthetists were interviewed to explore the actions and experiences of caring for children in a high technology environment using a qualitative method, known as the Critical Incident Technique (CIT). In the two following studies (Study II, III) a cross-sectional design was used and two national surveys were performed to obtain knowledge on the status in Sweden regarding the care of children with ASD in high technology environments. Sixty-eight anaesthesia departments, 38 paediatric departments and 86 radiology departments responded to the survey. Descriptive statistic was used for the answers apart from the comments part of the questionnaire where qualitative content analysis was used. Due to the limited existence of guidelines in these environments, the creation ofevidence-based guidelines was performed in Study IV, using a Delphi method. The Delphi study was based on information gleaned from the previous studies and from the literature, and 21 experts identified in Study II and III were the expert panel developing the guidelines.Result: Nurses identified children with special needs such as children with ASD as a vulnerable group in a high technology environment (Study I). Seven departments in the anaesthesia context had guidelines for caring for children with ASD in the perioperative context. In the other departments, the care of children with ASD was dependent on the knowledge of the nurse presently working there (Study II). None of the radiology departments in Sweden had guidelines on how to care for children with ASD going through a radiographic examination without anaesthesia (Study III). As a result of Study I, II and III, the need for structured guidelines for caring for children with ASD in a high technology context was identified and a set of guidelines and a checklist was created. The guidelines relate to the organisational structure for the care of children with deficits in social interaction, communication, sensory sensitivity and dependence on routines. The checklist relates to gleaning information about the specific child to be able to give person-centred care based on the specific characteristic of the child (Study IV).Conclusion: Nurses working in a high technology environment in health care have diverse experiences of preventing anxiety in children with ASD coming for a challenging procedure. There are a limited number of evidence-based guidelines to decrease anxiety and to create participation in this group ofchildren. Evidence-based guidelines were created as a tool for enhancing person-centred care in a high technology environment for this group of children. The fact that several problems are assembled under one disorder makes ASD a useful condition to have as a basis for formulating national guidelines. Guidelines that cater for the care of children with ASD in a high technology environment using a person-centred approach may also extend to the care for children with other neurodevelopmental disorders that exhibit some of the same problems as children with ASD.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Omvårdnad0 (SwePub)303052 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Nursing0 (SwePub)303052 hsv//eng
653 a Anaesthesia
653 a autism
653 a children
653 a guidelines
653 a nurses
653 a participation
653 a radiology
7001 a Huus, Karina,c Universitetslektoru Jönköping University,HHJ, Avdelningen för omvårdnad4 ths0 (Swepub:hj)HuCa
7001 a Enskär, Karin,c Professoru Jönköping University,HHJ, Avdelningen för omvårdnad4 ths0 (Swepub:hj)EnKa
7001 a Björkman, Berit,c Universitetslektoru Jönköping University,HHJ, Avdelningen för naturvetenskap och biomedicin4 ths0 (Swepub:hj)BjBe
7001 a Fridlund, Bengt,c Professoru Jönköping University,HHJ. ADULT4 ths0 (Swepub:hj)FrBe
7001 a Ericsson, Elisabeth4 ths
7001 a Proczkowska-Björklund, Marie,c Ph.D.u Landstinget i Jönköpings län4 ths
7001 a Eriksson, Mats,c Professoru Örebro Universitet4 opn
7102 a Jönköping Universityb HHJ, Avdelningen för omvårdnad4 org
8564 u https://hj.diva-portal.org/smash/get/diva2:1085185/FULLTEXT01.pdfx primaryx Raw objecty fulltext
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-35268

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