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- Forsberg, Anette,1965-Region Örebro län,Division of Neurology, Karolinska Institutet, Stockholm, Sweden; Family Medicine Research Centre, Örebro County Council, Örebro, Sweden (author)
Balancing everyday life two years after falling ill with Guillain-Barre syndrome : a qualitative study
- Article/chapterEnglish2015
Publisher, publication year, extent ...
- 2014-09-08
- London, United Kingdom :Sage Publications,2015
- printrdacarrier
Numbers
- LIBRIS-ID:oai:DiVA.org:oru-42583
- https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-42583URI
- https://doi.org/10.1177/0269215514549564DOI
- https://lup.lub.lu.se/record/4692043URI
- http://kipublications.ki.se/Default.aspx?queryparsed=id:131433477URI
Supplementary language notes
- Language:English
- Summary in:English
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- SwePubSwePub
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Notes
- Funding Agencies:Swedish Association of Persons with Neurological DisabilitiesBoard of Research for Health and Caring Sciences, Karolinska Institutet, Sweden
- Purpose: The aim was to describe experiences of disability in everyday life and managing the recovery process two years after falling ill with Guillain-Barré syndrome.Design: Qualitative interview study.Methods: Interviews were conducted with 35 persons (22 male, mean age 50 years) two years after the onset of Guillain-Barré syndrome. The interviews were transcribed verbatim and analysed using content analysis.Results: The analysis revealed four categories and an overall theme: ‘Striving for balance in everyday life’. The participants described persistent lived body restrictions that affected their arms, legs, and face. Bodily symptoms and loss of energy limited or restricted many everyday activities. In connection with healthcare, both satisfaction and feeling vulnerable in a critical situation were described. Experiences of the recovery process varied. The participants described acceptance and reappraisal of a new life situation despite their limitations, and having gained the knowledge that life can change suddenly. However, they also expressed disappointment following an overly positive prognosis in the early stages, and over a continuous wait for recovery. For some participants life had returned to as before.Conclusion: The participants experienced limitations in everyday life and decreased functioning in several parts of the body. The recovery process may still be ongoing two years after onset. Rehabilitation intervention with an extended focus on supporting individualized coping processes could facilitate ways to live with persistent disability.
Subject headings and genre
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Arbetsterapi hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Occupational Therapy hsv//eng
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Annan hälsovetenskap hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Other Health Sciences hsv//eng
- MEDICIN OCH HÄLSOVETENSKAP Annan medicin och hälsovetenskap Övrig annan medicin och hälsovetenskap hsv//swe
- MEDICAL AND HEALTH SCIENCES Other Medical and Health Sciences Other Medical and Health Sciences not elsewhere specified hsv//eng
- Guillain-Barré Syndrome
- qualitative studies
- recovery process
- disability
Added entries (persons, corporate bodies, meetings, titles ...)
- Widén-Holmqvist, LottaKarolinska Institutet (author)
- Ahlström, Gerd,1952-Lund University,Lunds universitet,Äldres hälsa och personcentrerad vård,Forskargrupper vid Lunds universitet,Older people's health and Person-Centred care,Lund University Research Groups(Swepub:lu)vard-gas (author)
- Region Örebro länDivision of Neurology, Karolinska Institutet, Stockholm, Sweden; Family Medicine Research Centre, Örebro County Council, Örebro, Sweden (creator_code:org_t)
Related titles
- In:Clinical RehabilitationLondon, United Kingdom : Sage Publications29:6, s. 601-6100269-21551477-0873
Internet link
- http://www.ncbi.nlm.nih.gov/pubmed/25200880?dopt=AbstractFULLTEXT
- http://dx.doi.org/10.1177/0269215514549564FULLTEXT
- https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-42583
- https://doi.org/10.1177/0269215514549564
- https://lup.lub.lu.se/record/4692043
- http://kipublications.ki.se/Default.aspx?queryparsed=id:131433477
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