Balancing everyday life two years after falling ill with Guillain-Barre syndrome: a qualitative study

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Fältnamn	Indikatorer	Metadata
000		04894naa a2200517 4500
001		oai:DiVA.org:oru-42583
003		SwePub
008		150211s2015 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
009		oai:lup.lub.lu.se:7d63cf55-ba11-430f-8c76-b61f1033d99f
009		oai:prod.swepub.kib.ki.se:131433477
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-425832 URI
024	7	a https://doi.org/10.1177/02692155145495642 DOI
024	7	a https://lup.lub.lu.se/record/46920432 URI
024	7	a http://kipublications.ki.se/Default.aspx?queryparsed=id:1314334772 URI
040		a (SwePub)orud (SwePub)lud (SwePub)ki
041		a engb eng
042		9 SwePub
072	7	a ref2 swepub-contenttype
072	7	a art2 swepub-publicationtype
100	1	a Forsberg, Anette,d 1965-u Region Örebro län,Division of Neurology, Karolinska Institutet, Stockholm, Sweden; Family Medicine Research Centre, Örebro County Council, Örebro, Sweden4 aut0 (Swepub:oru)aefg
245	1 0	a Balancing everyday life two years after falling ill with Guillain-Barre syndrome :b a qualitative study
264		c 2014-09-08
264	1	a London, United Kingdom :b Sage Publications,c 2015
338		a print2 rdacarrier
500		a Funding Agencies:Swedish Association of Persons with Neurological DisabilitiesBoard of Research for Health and Caring Sciences, Karolinska Institutet, Sweden
520		a Purpose: The aim was to describe experiences of disability in everyday life and managing the recovery process two years after falling ill with Guillain-Barré syndrome.Design: Qualitative interview study.Methods: Interviews were conducted with 35 persons (22 male, mean age 50 years) two years after the onset of Guillain-Barré syndrome. The interviews were transcribed verbatim and analysed using content analysis.Results: The analysis revealed four categories and an overall theme: ‘Striving for balance in everyday life’. The participants described persistent lived body restrictions that affected their arms, legs, and face. Bodily symptoms and loss of energy limited or restricted many everyday activities. In connection with healthcare, both satisfaction and feeling vulnerable in a critical situation were described. Experiences of the recovery process varied. The participants described acceptance and reappraisal of a new life situation despite their limitations, and having gained the knowledge that life can change suddenly. However, they also expressed disappointment following an overly positive prognosis in the early stages, and over a continuous wait for recovery. For some participants life had returned to as before.Conclusion: The participants experienced limitations in everyday life and decreased functioning in several parts of the body. The recovery process may still be ongoing two years after onset. Rehabilitation intervention with an extended focus on supporting individualized coping processes could facilitate ways to live with persistent disability.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Arbetsterapi0 (SwePub)303062 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Occupational Therapy0 (SwePub)303062 hsv//eng
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Annan hälsovetenskap0 (SwePub)303992 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Other Health Sciences0 (SwePub)303992 hsv//eng
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Annan medicin och hälsovetenskapx Övrig annan medicin och hälsovetenskap0 (SwePub)305992 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Other Medical and Health Sciencesx Other Medical and Health Sciences not elsewhere specified0 (SwePub)305992 hsv//eng
653		a Guillain-Barré Syndrome
653		a qualitative studies
653		a recovery process
653		a disability
700	1	a Widén-Holmqvist, Lottau Karolinska Institutet4 aut
700	1	a Ahlström, Gerd,d 1952-u Lund University,Lunds universitet,Äldres hälsa och personcentrerad vård,Forskargrupper vid Lunds universitet,Older people's health and Person-Centred care,Lund University Research Groups4 aut0 (Swepub:lu)vard-gas
710	2	a Region Örebro länb Division of Neurology, Karolinska Institutet, Stockholm, Sweden; Family Medicine Research Centre, Örebro County Council, Örebro, Sweden4 org
773	0	t Clinical Rehabilitationd London, United Kingdom : Sage Publicationsg 29:6, s. 601-610q 29:6<601-610x 0269-2155x 1477-0873
856	4	u http://www.ncbi.nlm.nih.gov/pubmed/25200880?dopt=Abstracty FULLTEXT
856	4	u http://dx.doi.org/10.1177/0269215514549564y FULLTEXT
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-42583
856	4 8	u https://doi.org/10.1177/0269215514549564
856	4 8	u https://lup.lub.lu.se/record/4692043
856	4 8	u http://kipublications.ki.se/Default.aspx?queryparsed=id:131433477

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